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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Monday, 9 August 2010

Good day bad day

Oooo had a lie in and didn't feel the remotest bit guilty. No work today and it feels good. Caught up on my recorded TV programmes, so I now know who is doing what to who in Gray's Anatomy. I also packed up a couple of parcels to go back, so that's £70 saved... good girl burders!
Took yet another sample into the hospital to see if there is anything lurking in my lungs apart from the psuedomonas. I'm kind of hoping something else is in there causing these hot sweats and making me feel under par, otherwise I can see a hospital stay looming... yuk.

Went to visit my friend in Terling as I haven't seen her since before her surprise wedding. She looks really well and she is really settled over there. I had a call from Ann on the way to Terling, that she has became a nan to a little 6lb girl and mother, baby and nan are all doing well!

Stopped off at Tescos on the way home to swap my vouchers for double as advertised, so I could buy a new hairdryer. I checked in the town branch first as it has a bigger range there. I asked just how you doubled your vouchers, as I didn't want to go upstairs if I had to come straight down again to swap the vouchers. I was told you could exchange at any counter. Ok got that easy peasy, but couldn't find any hairdryers in there, so went off to the Tescos on the edge of town where I do all my shopping as I had seen some in there. Found a hairdryer and worked out I could have a hand food mixer and a new orchid for my bathroom and only have to pay £4 extra... Whoa ho! Wrong... I ended up paying £19 and when I asked why, I was told I hadn't exchanged them first so I only got the face value rate! Where was I supposed to exchange them I asked? And I was told at the customer service till where I was already standing and no I couldn't cancel the sale and have my vouchers back as they had already gone through the till and yes they were sorry that someone had given me the wrong information, but basically tough titties! grrrrrrrrrrrrrgh!

A lovely day going down hill fast. Went down even faster when I got to mother's as she was having a bad day and her memory was shot to pieces again. Bless her she was so confused about her drug delivery it was heartbreaking. i had even gone and got them for her and handed them to have and still she kept asking when would they arrive.
Will take her out again tomorrow to the seaside and so hopefully she'll have a good day. She is so grateful just to be taken out for a ride, that it doesn't matter where, just as long as she is out the bungalow for a little while.
I'm sure there will be people that when she is gone that will feel bad that they never gave her any of their time which is all she craves. Or maybe they won't. Shame on them.

Lots of love Debbie x

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