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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Thursday, 8 April 2010

Racing drivers beware

Finally stopped shaking when I got into bed last night and then started all over again when I got up, but on the up side... I've only cried twice today.

Beautiful day today, blue skies, lovely and warm and that hopeful feeling about the day. I've even started thinking in 'find a donor' mode.

Idea one; when next having appointment cards printed up for the students, have two extra boxes for them to fill in, blood group and smoker/non smoker. If they look fairly hopeful, then lead towards trip wire on stairs. Sheryl always keeps a cool bag at work, so if I talk nicely to her I'm sure she'll let me borrow it.

Idea two; Take numbers of the speeding drivers who just have to pass me even though I'm doing the national speed limit. Get friend in police force to find out addresses so I can send them a little blue and red card, as I'm now seeing them as potential organ donors. Only a matter of time Mr Imustgofasterthanu, I just hope you don't ruin the organs in the process.

My heart has felt like it's been speeding up all day, but I'm sure it hasn't. I just feel a bit surreal. I've always thought that I was a bit of a fraud really with getting a mobility car and a blue badge etc. But I read the NHS page on heart and lung transplants and it clearly says 'only the severely ill will have this operation,' so bloody hell I must be ill. It's quite a thing to get your head round. Someone said today that I'll be the first person that they know to have a heart and lung transplant... me too.

Lots of love Debbie x

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