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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Thursday, 27 May 2010

One disaster too many.

Some days you really should stay in bed I've decided and today has been a prime example of why.

Yesterday ended really well after a dodgy start. My dress for the wedding arrived from M&S online and unfortunately was a bit snug, wearable, but made life difficult doing up a very stiff zip. I would have ended up doing a dance around the bedroom each time, looking like a demented crab with arms flailing about while trying to reach and pull at zip up at the same time.
I ended up flat out on the bed afterwards gasping for breath, so that baby had to go back, which was a pain as I had to get on my friend's card as they didn't accept Visa Electron for online ordering.
Called M&S and no dresses left in that size or god forbid the size larger. Ok looks like I'm going to have to start again.

I then popped into Freeport and managed to find a lovely dress and little jacket in a beautiful peacock blue/green colour and the zip just flew up! I also happened to find another two dresses that just insisted on coming home with me, but as I had sold five dresses at work the previous day, I didn't feel too guilty.

This now meant that I had to take the M&S one back to the town in my lunch break, which is what I wanted to avoid and is why I went online in the first place. Of course I couldn't get parked anywhere near the shop and ended up walking from the Meadows car park which for someone who isn't on oxygen is fair trot let alone me. Got to Marks knackered, explained to assistant my plight and was told no money back as it wasn't done on my card, but I could exchange or have vouchers.
Ok I needed a summer quilt as other quilt too hot now and I found a black dress that I didn't really need, but what the heck. Went to pay and as there was still £25 left over, she would put back on my card, because as there was no card details on the form/reciept it's self, she could pretend she didn't know... durrr why didn't that other lady say that before I got the dress!
Never mind, saved some money in the end and got a little black number that does actually look very nice and will always come in handy.

Returned back to car park absolutely shattered. Got my chip zapped at the disability office in the car park and drove to the car park exit to get out and it wouldn't let me out.
Of course I then dropped the chip under the car to where I couldn't reach it again. Asked the man in the little office if he could help and was told that it wasn't his job, he only washed cars and he was busy. I explained again that I couldn't reach and hello I really, really needed help please as my oxygen wasn't a fashion accessory!
Pushed the button for help and was told that I hadn't got the chip zapped. 'But I have' I cried 'in the disability office.' Apparently that's not enough, you have to get it zapped through another machine, so I'd have to walk back to the other side of the car park and do it...Grrrgh I explained that I was on oxygen and was really not coping well and my chip had rolled under the car and the nasty car wash man wouldn't help me, please couldn't you just lift the barrier, as I really thought I was about to cry like a baby... No... Bastards.
Nasty car wash man then felt sorry for me, as he was busy leaning up the wall listening to what was happening and he eventually got my chip, but I still had to walk across to other side of car park to get the said chip zapped again.

Got back to work, vowing that I would never ever go to the town again on my own and Sam reminded me that I said that last time... Oh yes I remember now, that trip was a nightmare too.
Thought I needed just to sit still for a while in a quiet office to get my breath back, but needed to spend a penny first. While sitting on the loo, I thought that my necklace label was a spider so I jumped up and peed down my leg! Life doesn't get better than this does it!

Lots of love Debbie x

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