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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Wednesday 18 August 2010

Go Tilda!

I had a really lovely day today.

I had a friend round this morning that I haven't seen for a while to catch up on all the gossip about the wedding, work etc over a coffee. Then 'Me Julie' came round in the afternoon for a cuppa and to help out by getting me some shopping, plus to give me a much needed boost about future plans and outings.

I am one of these people that have to have something to look forward to. Whether it's a shopping trip or a holiday, I need something to aim for. Just the thought that I've got something looming keeps me happy with planning of what I'll wear etc.
But the main reason I like to know what's happening in advance is my need to know exactly how I am getting there, times and what the place is like. Research is important to me now, boring I know, but I don't feel safe with surprises or a 'whatever' attitude anymore. It's more: How far have I got to walk, is there somewhere to sit, steps anywhere etc now?
A terrible shame as I used to always be so spontaneous and up for anything, but now everything has to planned to the letter and with a back up plan b and plan c!

Sadie came round later to give me postural drainage and a good bashing! This was the best I have felt since last week, my chest felt so much clearer. It's been harder for me to clear my chest since the pneumonia as the phlegm has been a lot thicker and stickier. Yuk I know, but it makes breathing so hard when it's like that. Tomorrow the demon basher Vera will have a go at me... she a very angry lady!

What happened afterwards though I have no idea. I had a lovely long soak in a hot bath, which I always have after a bashing as I can lay flat easily afterwards and enjoy it. Then I settled down to watch 'Penguin Island' and that's when the flood gates opened. All I can think is it must be the drugs making my hormones all a kilter, but I sobbed my heart out when Tilda the baby penguin's mother Jess rejected her. Poor Tilda still had half her fluffy feathers and only half the oiled feathers that she needed for swimming, but she was starving and needed food for when she had to swim otherwise she'd die. Oh my goodness she was so cute waddling up the beach all on her own to the open sea!
When I stopped crying over that, I started again at Gok's fashion fix! That woman had a lovely shaped body in my eyes. I have shape, but a hexagon on legs ain't a good one... Please Gok save me too!

Hopefully I'll be less hormonal tomorrow. I just hope Vera hasn't watched the same TV too and thinks I'm Tilda's mother!

Lots of love Debbie x

1 comment:

  1. just watched the little penguins, go tilda go!

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