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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Thursday, 19 August 2010

Not a dull moment

Ooo what a day, gone from being in my pjs all day to driving to the doctors, then driving to my first physio session at St.Michael's and then driving to my second physio session at Chelmsford. Blimey I'm now knackered!

The doctors was to have a chat about what to do next. I'm supposed to return back to work tomorrow as my self certificated week will be up, but no way am I ready as my lungs have only just started clearing properly. Luckily she agreed and signed me off for another week, but she put 'chest infection' on my certificate. Bloody chest infection? Since when has pneumonia been classed as a chest infection!? When I asked her, she said well that is what pneumonia is. Well that sounds a bit tame compared to strepoccal pneumoniae, so I'm plumping for the latter thank you very much! But we both agreed on that's why my sleep pattern might well have been up the creek with pneumonia bubbling away in my lungs underneath the pseudomonas.

Went off to see Vera the Destroyer for my chest pummelling this afternoon. I always end up laughing so much with her that I clear my lungs that way. This time I think the four foot nothing, one woman mean machine was training for Nottinghill Carnival as she was definitely getting down with the percussion beats on my sides. All she needed was a head full of feathers and a sparkling bikini over her nursy outfit and she'd be there! They are really lovely there and Vera is a star. I know I take the rise out of her, but she has a heart of gold. I came away with full instructions of what to do next, rest, another sample, keep out of trouble etc.

Next was physio on my shoulder. Thankfully it is improving and I can move it easier without the wincing and I have been doing my exercises which is very good considering I have felt pants all week. Had some acupuncture which helped a lot last time, so fingers crossed it will help again.
I came home from there absolutely shattered, yawning all the way. Thankfully Greta appeared at my door like meals on wheels bless her.

So just my glasses to sort out now as I'm sure they are too strong and hopefully my body will be on track again. Just hope they don't stick acupuncture needles in me, which I'm sure they'd love to shove red hot needles in my eyes as I've been a right moaner with them!

Lots of love Debbie x

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