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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Saturday, 27 February 2010

Ok... who has taken my batteries out? I am so damn tired. I'm ok at work as long as I don't actually walk around too much, but when I get home I am exhausted. Then strangely enough at the weekends I seem to hit an all time low.... why?

I know I try and do all my housework and then do chores for mother, but I feel as if my body is on a go slow while I'm doing it. Unfair if you ask me, as I want to be bright and breezy at the weekends and it all seemed very promising with the overnight O2 at the start. Maybe I'm not pacing myself? Or perhaps I need a holiday, I prefer that reasoning. I wonder if I can get one on the NHS? A private NHS jet, so no hassles about my oxygen, a beach hut somewhere gorgeous and 24hr man servant to attend to my every whim... Ooo bliss.

Still we had new weather here today... sunshine. That was nice, made you feel better and my sheets got a lovely airing on the washing line. They smelt so good when I got them in.
Plus the sweet girl at the garden centre made me cheese on toast this afternoon too... Perhaps life isn't as bad as first thought, just got to find my pesky batteries though!

Lots of love Debbie x

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