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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Tuesday, 2 February 2010

Sleeping sickness

I have slept so much today that I'm beginning to wonder if someone slipped a micky flynn in my camomile tea last night!

I can't believe just how much you can sleep when feeling under the weather, although daytime TV can hypnotize you into a stupor that I have learnt. No wonder my poor 92 year old mother thinks she's losing the plot!
But on a worrying note if you rack up the amount of hours you spend immobile when you are ill, the waste of time is very scary. Over the last couple of years I have wasted so much time not having energy and feeling like an old lady when I've been off work sick. When people say I do too much when I am well, it's because of me turning into a sofa hugger when ill and not wanting to waste a minute of my precious life when I do have the energy. Although I have learnt to take it slow too now... at long last I think I have learnt balance.

I hope to be back at work Thursday, although I may still sound like I should be dressed in stockings and a basque when answering the phone!

Also on a bright note, my physio called to ask if I was on oxygen when I did my overnight stats test.. does this mean that they came out relatively high so no need for overnight oxygen? Oh please guardian angels I hope so, fingers crossed hey!

lots of love Debbie x

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