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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Thursday, 18 November 2010

Manic Wednesdays, boring Thursdays

A strange couple of days. Wednesday was full of ups and downs and today just diddly squat.
I just wonder how the day can disappear when you are just poodling about and appear to being do very little?

I went with my friend to Ocky Health yesterday and it felt rather like handing over your first born child to the teacher on their first day at school. She looked absolutely petrified going in and whatever I said to try and make her feel better wasn't going to put her mind at ease. But although she looked like she had been through the wringer, they both came out of the office kind of smiling and she now has tasks to do to get her back on track before seeing the doctor again.
I guess I am very lucky as I know I have 'silent scream' moments and panic attacks, but I do have the nature that bounces back very quickly whatever is thrown at me. It may take a day, but normally never longer.
Her first task was to run into Broomfield hospital and get my repeat drugs for me, as the new car park, new pharmacy, new wing etc was opened this week and I didn't think I could negotiate that on my own today and in fact it took her all of fifteen minutes to get the drugs and come back to my car.
When I dropped her off at her house, she had that look on her face of someone who has just removed their magic knickers... one of huge relief.
We both came to a decision about the Christmas do which we had been looking forward to, but now it hasn't got the same appeal for either of us. Ok we may have to lose the £50, but rather that than her dreading it and me taking a week so near to Christmas to get over it. I think we are being sensible in not going. Besides I can't dance, well apart from just one and takes knackers me for the next day and I wouldn't be able to drink if I was driving and there's no way that I could go on the dodgems wearing my oxygen. If it got hit, I could take the whole of Northweald out! Nah, safer for everyone that I stay at home, as it's not that I haven't got things to look forward to.
I then had lunch at work with the learning support girls and it already seems weird for me up there now, as if I am interloper on the second floor. I know there was only a few working up there, but there was none of the usual buzz.
Next stop was my mother's where there was more than enough buzz to keep me going. We almost come to blows again over her bloody junk mail. She is convinced that she has won one of these £15,000 that drop through her door on a daily basis and all she has to do is buy a load of crap to be entered into the draw.
I had two friends around for a meal tonight, my old neighbour and another old friend and thankfully that was a good way to end the day. I am now the owner of some pretty autumn coloured flowers and I have some wine left over... result!

Today I was busy doing nothing really. I had to stay with mother until the gas man had been to inspect her boiler etc, so after I'd done her shopping and cooked a spag bol for a late lunch, he turned up and was gone in about 15mins flat. So then I was dispatched off to do some more shopping as I had forgotten her milk and then thankfully I was able to rest.
Derek also came round to deliberate just how he is going to sort out the fridge housing crisis and as usual, it was 'No problem' and off he went. He always makes me feel calm bless him.
Mother whispered should she give him a fiver for doing the work? Err hello mother anyone there! She has no idea about money at times daft old bat. She'll spend about £30 on cakes from Belgium or garden bulbs from Holland that never grow (from junk mail again) but then say something stupid like a fiver for a job which includes someones hard work and time! Bless her she blushed and said 'I'm being daft aren't I again'... In a nutshell yes mother in a nutshell!

Lots of love Debbie x

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