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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Tuesday 30 November 2010

Grumpy teenager mode

Ok who glued my eyes together in the night, because this morning they really didn't want to open and I had to meet a builder early this morning about my bathroom.
It was snowing and my bed was warm. I did not want to leave it. I'm not sure whether it was the new drugs making me so sleepy or I suspect it was my body telling it needs sleep to get over this bout of infection, but either way I wanted to sleep so bad.
Well that ain't going to happen as I have to get up early again tomorrow, because the painters are coming back to finish off the walls from three weeks ago. Why do they have to come so bloody early each time, I am grateful honestly, but I need to sleep?
Once I was up, I really couldn't settle and was walking around like a caged animal all be it a sleepy one, but sleepy means grumpy. My physio had been cancelled because of the snow which I was quite pleased about, as I really didn't want to drive in the snow to get to the hospital. But of course that always has a knock on effect and that is my chest won't get all the gunk out until Friday now and what happens if it's still snowy, you can't expect the poor physios to come out in bad weather.
I walked over to my mother's as I thought moving about might help it shift it off my chest, but that was a bad move as I wasn't in the right mood for mother's hoarding junk mail tactics and every time I sat down, it was get me this or get me that please and she worries me that she can't remember if she eaten or not. I had made todays lunch for her yesterday, but as there was no washing up then it's possible they were eaten yesterday before she went to bed after she ate the cottage pie for dinner and the other sandwiches for lunch... not the first time this has happened and I guess if she is hungry than she'll make herself some toast.
I love my mother dearly, but today I really couldn't be arsed with her junk mail and having to repeat myself a hundred times... then of course I feel guilty for acting like a sulky teenager. Bummer because she'll look at you and hold your face between her hands before she kisses you goodbye and I will hate myself all night.
I used to love the snow and still do, but standing watching the snow falling from a window smacks of my mother's life really, it's no fun being on your own at times. Sorry mumma I will try and retur to being the nice daughter tomorrow.

Not a great day today, more frustrating than anything I guess.

Lots of love Debbie x

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