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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Friday, 19 November 2010

Hello heart

I saw my heart today and it was wonderful. I know parents to be have had the pleasure of seeing their unborn by scans for many years now, but today I had an Echocardiogram on my heart and lungs and I got to see them both.
It was beating rather fast, but that could have been because we got lost twice trying to find the new Cardio Suite in Broomfield which is rather like a space station now, but for me it was instant... love at first sight.
The disco that was being held in my lungs was a little disconcerting, but the lady operating the equipment told me that the blue and red flashing lights were showing the blood and oxygen circulation in my lungs... all clever stuff.
I have always had trouble trying to come to grips that I may have to have my heart swapped with the lungs' owner ever since it was first mentioned, as they like to do all three at the same time to lessen the chance of rejection and better results etc.
Swapping my lungs no problem as they have caused me untold grief ever since I was young, but my heart being swapped is something that doesn't sit easily with me... my heart is me. What happens if I get a scum bags heart, will I start stealing cars or have the urge to say 'everyone down on the floor now' when queuing up in the post office to send a parcel? I can be brusque now with the cute little heart that I have now, so what happens after the transplant?!
I know my heart is tired, because it feels tired and if that scan had a speaker, I'm sure you would hear it in a tiny voice saying how weary it is with all this pumping what little oxygen I have around my body to do so many important things.
I've tired to take care of it, but now I have seen it I will treasure it for as long as I have it.
I don't care if people think I have lost the plot, but tonight I will go to sleep with my hands on it and hope it knows that I am trying to give it a hug.

Lots of love Debbie x

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