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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Tuesday 21 December 2010

Like mother like daughter

Yesterday's early no show of workmen, lulled me into a false impression that today's workmen would have trouble getting in and out of the work's yard to get to me. Er no, 8.30am I received a phone call to say they were standing outside... sod.
Jumping out of bed is not a good move when you have dodgy lungs and a heart that breaks into a quickstep when under stress, but after asking for 5mins I was actually decent to go to the front door. No sign of them. Obviously they had gone back to their van although I couldn't see a van.
I went back to bedroom and threw on more clothes and cleaned teeth. Still no sign of them.
I called their mobile and they were standing on the Broadway not Broadway Court! Still gave me an extra five minutes to spend another penny.
Two hours later and bathroom is now finished... hoorah I can now have a shower!

Went off and did some more shopping, this time a booze run for me and yet more shopping for mother after her phone call yesterday evening about three hours after I had just got back from buying her groceries. The call went on the lines of 'oh I really fancy some dates' and then another long list of things that she really needed.
I can't moan as it is awful if you are reliant on other people's kindness and you really fancy something definite to eat. I have been reduced to tears when I've asked for English apples and they've brought Granny Smiths. If you fancy something particular, a substitute just ain't going to crack it, even though you smile widely going yum and then you cry when the person has gone as you feel guilty for feeling ungrateful, or a bit of a princess or whatever. Having to rely on people is one of the hardest things I've found about this debilitating illness, so I know where mother is coming from.
Still mother is now happy as she had plenty of visitors today, my brother and his wife, and then later Oliver and Reni all bearing Christmas presents.

Lots of love Debbie x

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