About Me

My photo
I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Saturday, 11 December 2010

What a difference a year makes

How is it I'm not working anymore, but I still seem to be rushing around like a thing possessed?
I keep forgetting that Friday rehab starts at 2pm and I never seem to have enough time before hand to do all I want to.
Mind you when I was working, it was always 2pm before I decided that it was lunchtime, so I guess the mornings have always had a habit of disappearing on me.
Fair dues though, I was late for rehab as I had to do yet another sample and I can never produce sputum in the morning and especially just lately, as I haven't been as lively on that front! Obviously why I'm doing yet another sample.
God the technicians must be fed up in the Broomfield labs of looking at the contents of my lungs. I wonder at what point in their lives do they decide that looking at sputum is the job for them?
Does it give them job satisfaction? Do they go home and say to their partners 'Oh I had a beautiful specimen of sputum today, you should have seen the sheen and texture of it?
Went straight to rehab and had to do the shuttle test as soon as I walked in. Actually I have improved so that shows rehab is worth while even though most of the blokes there moan for England.
Rounded Friday night up with going to Strada for a meal with Sam, Debbie M, Jean and Sheila from work for Debbie M's birthday. Very nice evening, good company and good food. But very tired when I got back home. Talking is exhausting I have decided and I did do a lot of that!

Saturday morning I decided I had to put the Christmas tree up, especially with my aunties coming up tomorrow from Hastings. 30mins later I was knackered. It is quite sad really when you think that this time last year I managed to put the tree up without turning blue!
If anyone looked through the window, they would think I was sitting contemplating where the next bauble should go or whether each string of balls was equally looped, where in fact the truth was I had run out of steam somewhat and had to get back my puff before the next five baubles went up.
The annoying thing is my nose is so sore at the moment. When I'm wearing the oxyge it keeps running for some unknown reason and also the lining is quite thin now so it keeps bleeding too. If I stopped once to wipe my nose, I must have stopped about fifty times.
Mother has been quite confused today and very upset. I think it a mixture of my brother not seeing her for months, the aunties coming for the day and knowing that they are going to see an old woman this time and of course her friend dying last month.
I tried to cheer her up by Oliver and myself, well me directing and Oliver up and down the ladder, putting up her Christmas decorations, but I stood outside her window on my way home watching her putting her head in her hands. It broke my heart to see her like that.
I went on to Julie's as it was Derek's and Xanthe's birthday tea, where it was lovely and noisy and a chance to drown myself in people, but mother was there in my head the whole time.

Lots of love Debbie x

No comments:

Post a Comment