I think that every wheelchair should come with a manual. Yes I know you do actually get one about how to put it together, folding it down for backs of cars and so forth, running repairs etc, but I mean a manual that advises you what to do when facing night panics about going on a day trip out and just how many layers you should wear in what feels like minus 30. One duvet or two?
In summer you should be advised that you will get a sweaty crotch from seating on the padded seat... Mmmm inviting . And in winter you will get hypothermia from the toes upwards!
Yesterday I had a few worries about my palpitations that I had on Saturday. Hannah bless her, came out to me rather than me going to the hospital for my physio and came armed with her stats machine just in case my docobo was giving false readings on my heart rate etc or maybe I was reading it wrong... Oh such little faith.
Nah... stats came in at 79% and even Hannah nearly fainted at that reading! So what to do now as if palpitations don't calm down then no physio as that is dangerous for my old ticker and then no physio leads to chest infections that leads to everything being under pressure.
Luckily the fear of going to London for the day, didn't have an effect on my stats, the rest of me was shaking, but heart ok. I had a call from my specialist's secretary who was not happy either that the hospital missed out some vital tests, so thankfully I had asked the right questions to Hannah and Ruth and now the specialist is on the case too, they should be coming through pronto!
We had an early start for me and after lots of praying to my guardian angels last night, they certainly were looking after me as everything seemed to run smoothly. Julie, Natalie, Reni and myself... may I mention how cool it is to have a daughter or daughter in law to go out and about with, long may it reign... anyway we actually bagged the last disabled car parking space at Braintree railway station, as we honestly thought we'd have to get our tickets there and drive like the wind to Freeport to park. But no, a space waiting just for us and a buy two rail tickets get two free offer too!
Got to London and it turns out that our very nice taxi driver worked with Julie 35 years ago and let us off cheap for ride to Covent Garden.
There had to buy first extra item of clothing... more socks, but bliss to be able to feel feet again. Had lunch in nice a very restaurant, which was also a bargain deal and warm.
After having a surprise of seeing the Coca Cola lorry from the TV, the advert that to all of us heralds Christmas is coming was in Covent Garden, complete with a fab singing band and giving away free cans of Coca Cola to boot... result. Though the sad little confectionery vendor looked naffed off by his takings going down.
Next another nice cabbie, who also let us off some of the fare without even knowing any of us and he took us to Winter Wonderland in Hyde Park where it was F A B!
Brought another item of clothing, some rather groovy earmuffs, but Oooo so warm.
We did the mulled wine, the Christmas stalls, looked on with awe at the Christmas themed fun fair, listened to the talking tree. And no it really was talking and wasn't my drugs again and we ate candy floss after going on the Big Wheel.
Really wow up there, even if Natalie kept scaring Reni by moving the the capsule that we were in by jumping from seat to seat with a 'Oh look at that' as she viewed London through the eye of a camera. They made me roar as they were like children again, the bouncy one and the timid one, but even the timid one had let go and was spinning round looking at everything by the fourth trip round!
The journey home we thought we had lucked out, as it took ages to get to Liverpool Street, although we got to see lots of pretty lights and trees, but sadly we arrived five minutes into peak time. But thank you guardian angels, but not one person checked our tickets as we went through the disabled persons gate and we were home and dry on the train bound home.
So thank you angels of the heavenly kind and my human, but equally heavenly friends who I adore and knew how scared I was of going today, but never berated me for it. Thank you, thank you, thank you.
Lots of love Debbie x
About Me
- Me...Debbie Burden... or known as Burders
- I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!
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