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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Monday 6 December 2010

Wrap your sandwiches in a map please

Took Julie to Broomfield airport, sorry hospital this afternoon and it's still no less daunting even on the second visit. We went early enough which is just as well as the directions we were given for Julie's clinic were far from straight forward and some of the 'Stop us and ask us' hospital helpers, seemed as confused as we were. There was three ladies at the check in desk and we were all going to the same place (I was ear wigging!), but we all arrived from different directions, but all wearing that look of bewilderment on our faces. Sounds like the beginning of of a limerick. Actually one of the ladies didn't even turn up at the end destination, so she is probably still lost in transit going round and round and round!
It is really like a rabbit warren there. I was mentally taking notes for when I have to go next time to see my specialist, all very confusing.

From there it was a mad dash home so I could go to Rehab. Half of me was hoping that it would have been cancelled because of the freezing fog, but no such luck. I do feel a lot better after going to rehab, but I always have to drag myself there each time with what feels like concrete shoes on. Still you stop feeling useless there and you can have a laugh with the others who are in much the same boat.
I asked Ruth about my palpitations, but as I haven't had the meeting with my specialist about results from my tests as yet, it looks if it happens again I'll have to speak to my doctor. But as Ruth says no doubt they'll say wait till I speak to my specialist. And it goes round and round!

Lots of love Debbie x

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