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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Tuesday, 19 April 2011

I'm too short for my weight

Another busy day in paradise.

I had my Dexa Scan this morning and I really hope that the angiogram is as straightforward as that one, but alas I know by the way that I hide from the paperwork and come over in a cold sweat when i am brave enough to read it, that is going to be a bit of an experience that I would rather miss out on.
The nurse who conducted the scan today, was so nice and for one moment I felt so close to getting this transplant, that I felt that the next step after the angiogram would just to pop down to the hospital and pick a set of lungs, one size fits all.
If only.

My next task of the day was to pick up my new glasses and surprise, they aren't rose tinted. Still they feel good when wearing them and thankfully I don't think that I will have all the hassle that I had with the last pair.
After walking from my car to the opticians and back even with the help of my 'go faster' wheels, I was shattered and fell asleep in my back garden once I got home.
That was a bit of a stupid thing to do as I felt bloody awful when I woke up and I then had to zoom off to St Michael's for physio.
Having that done in this hot weather is not a pleasant experience and as soon as I got round to mother's, I fell asleep yet again.

For those of you who don't actually know what happens in my physio sessions, it involves me lying in a postural drainage position which is feet higher than my head.
This is normally achieved by tilting the head section of the hospital bed down and a rather large pillow placed under my hips so all the crap out my lungs drains out. The physio's help this process by banging my sides in a cupping motion and shaking into my chest area which helps me cough it all up.
The new NHS pillows which are placed under me are these God awful things that are full of air and balancing on one of those, is a bit like sitting one of those bananas that you see abroad being dragged behind a speed boat, bouncing up and down on the sea!
If you don't have a headache when you start, you certainly do when you have finished and all the fillings in your teeth rattle too.

Derek came round and had a mammoth task finishing night. I now have the letters spelling 'Rock & Roll' on my wall and they look fab. I am so pleased with them.
I also have my fire pit in the garden ready for action and my beautiful silver mirror is up on the wall in the hallway.
I now really feel that I am here to stay and not just in transit. My bungalow is shouting out that 'Debbie lives here!'

Things I have learnt today.
1; Lose some weight. I had to be weighed and have my height measured for this scan and I am a stone and a bit overweight and my BMI is quite higher than it should be.
2; Make sure in future that I measure things before ordering them, as I might not be so lucky next time... Derek's words, not mine!
3; My feet now freeze in bed thanks to my 'Coolsleeper' mattress. must check to see if I have on upside down.
4; Read all official letters as they arrive. Apparently I'm not entitled to free prescriptions and only a little help towards dentist and optician costs.

Lots of love Debbie x

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