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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Wednesday, 20 April 2011

Ms Angry of Essex

What a scorcher today.
Decided to take mother out to Maldon again for another picnic and as I forgot to pack the deckchairs, I had to balance on mother's walking frame as hers has a seat. Luckily it wasn't too uncomfortable and at least I was able to catch a few sun rays.
Mother was quite happy to sit in the car with the doors and windows wide open, as that's less hassle for her what with her legs playing up.
I'm amazed just how many cars not sporting a blue badge, park in the disabled bays there. Whether it's that the drivers don't actually see the signs attached to the wooden poles or they just couldn't give a shite, I'm not sure.
I think maybe the latter, as it's quite fun to see them squirm when they come to get back in their cars while you are sitting there next to their four by fours eating a pork pie balanced on a walking frame!

I've been quite short of breath today and I should find out whether I have another infection lurking or that I am just suffering from hay fever, although Hannah doesn't actually think that hay fever would affect me like that.
Hard to believe that the bright yellow rape fields that hurt your eyes where they are so luminous, doesn't have some effect on you as the smell of rape hangs so heavily in the air around our area.

Was a tad annoyed with my doctor as she still hadn't phoned back to our chemist after their numerous requests about a problem that has arisen.
The drug manufacturers who produce my drugs to clear the mucus off my chest, have fell behind with their supplies. Now they do have the cheaper version that I used to take and can still take, although a bit rough on your stomach, but my doctor has to sanction it.
I want my chest to be problem free for this angiogram and as we already are worrying that I may have an infection, I thought she might have been a bit more on the ball, but at 4pm she still hadn't called back... why?
Not sure if I have a lot of faith in this doctor.
I am completely out of tablets now and have already missed a day and I can't help but feel she should be a tiny bit more concerned. As far as I know she hasn't many patients on her books waiting for a transplant.
Is this the Tory influence on the NHS? Drug companies having to find cheaper alternatives, oxygen suppliers quibbling on filling up your tank and trying to make you last longer between visits? The delivery chap said that they were trying to get everyone to stretch out longer.
Er no chance unless they want me to sit by my concentrator which turns air into oxygen all day everyday!
Better stop sending me for hospital appointments, rehab, physio and just try to live a normal bloody life then!
I am Ms Angry of Essex!

Lots of love Debbie x

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