Feel more in control today. Well lets face it anything would be more controlled than last night when I was like a wailing banshee at one point crying into my pimms.
Didn't get to the doctors as I left it too late to make an appointment and actually it worked out fine, as I called the oxygen assessment team and chatted to them instead. They made me realise that I didn't have one foot in my grave as yet and that I did have choices, so that was fab, as I lurve being in control and I felt as if I was again.
Have the oxygen man coming tomorrow now to lengthen my tubing which is very good, as my nose was pulled flat when trying to reach my pimms yesterday while stretching my tubing to it's limit! Other draw backs? Reni thought she had called my mother's by mistake, as my TV was on so loud to drown out the droning noise of the concentrator, so deafness could be a new ailment! And bless her she came up with some lovely plans to cheer me up. Other draw backs, the fear of blowing myself up when cooking. I'm not using naked flames, but I'm still frightened when near the cooker and I can't live on salads for the rest of my life.
Saw Julie today back from Turkey and looking gorgeous with her tan. She really looked well and yes she brought me my cushion covers for my birthday, so I have a little bit of Turkey in my living room again now. She also brought me loads of good wishes from everyone out there which was brilliant as some of them were in video form. I had a little wrap sent to me from Gem in my favourite turquoise blue... That man knows my tastes so well. She also brought a danish pastry which I wasn't going to eat at first as I'm doing well on my diet, but thought sod it, I'm in shock! Tasted good... Mmmmm
Sadie come round for my physio too and a very helpful chat. That girl always knows the right things to say, she knows me really well bless her.
So all in all a better day. I'll go back to work on Thursday after all and see how it goes. Not long now till I see Dr Blainely and then I can see what route things are going to take.
Thanks for bearing with me.
Lots of love Debbie x
About Me
- Me...Debbie Burden... or known as Burders
- I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!
No comments:
Post a Comment