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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Wednesday, 8 September 2010

Coffee anyone with one lump of phlegm or two?

Got up early today to return to work and wore my new super duper bargain dress freshly brought yesterday, so looking good oh yeah baby! Work day ended with me having physio on the counsellors coffee table with my feet resting on a chair, with mascara smudged down one side of my face and emptying the contents of my lungs into a carrier bag.
How can my day go so wrong????
Easy, mention that your fingers keep turning blue and the physio swot team come bursting into your work place with blue flashing lights on their heads. Ok forget the blue flashing light bit, but the LSA who was sitting with me at the desk to stop me walking about too much, actually asked if I was in private health care to get this VIP treatment.

So verdict goes as follows: oxygen stats good when laying down, but pants when sitting up. Blood pressure up and heart rate high which is causing the headaches and the low stats are causing the blue fingers. Result: go straight home and rest tonight and tomorrow. Low profile at work on Friday and an easy weekend. Mmmm obviously the step climbing at Frinton probably wasn't such a good idea then. Plus my Oxygen Assessment appointment has now been brought forward to Monday instead of the 27th for Vera the Ear Slasher to see what's going inside my blood.

Wouldn't it be lovely to go just one week having an illness free zone with no drugs, no having to lug about an oxygen unit on my back and no hospital appointments. Just to have a week of mindless sex, drugs and rock 'n' roll... In fact just going for a long walk in the sunshine breathing normally, followed by a cream tea on route would float my boat to be perfectly truthful.
Sorry I'm annoyed with my body today. It will pass I know, but at long last I had decided to have my hair highlighted and tonight I had an appointment booked and of course I had to delay it. Sulking doesn't help anyone, but right at this moment it feels bloody good!

Lots of love Debbie x

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