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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Monday, 27 September 2010

Little girl, you've had a busy day

Monday morning is here again already; gawd where does the weekend go? Today the drive in was really misty and everywhere was dank, but pretty and it made a delightful ride in. At the moment I need as many temptations as possible to get me into work, so beautiful scenery really helps.

My face is back to normal apart from my left eye hurting still and my stats were low yet again and that I have learnt, means I'm knackered before I start. But I still managed the day at work, which was really busy yet again and I managed a hard session at rehab, followed by a quick shop, cook mother's meal and then a meal with my boys and the lovely Reni. so yeah I did well.
Mind you, I could have fell asleep in the bath so easily when getting ready. Thanks to doing mother's evening meal, I had limited time before meeting my sons at our local Turkish restaurant. If I can't get to Turkey, then a Turkish meal will have to suffice! Very nice though, we all came out well and truly stuffed.

Had an interesting chat with one of the chaps at rehab today, he's been waiting for over a year now for a transplant. That made my heart sink I must admit, if my stats are averaging at 85 now on 16hr oxygen, what the hell am I going to be like in a years time and he's not even on oxygen yet? I asked where abouts he was on the list, but he wasn't sure. God I have so many questions to ask him, but where do I start.
Well I am one knackered, but very bunny now, so off to bed as I can just about see straight and with a dodgy eye, that's quite tiring.

Lots of love Debbie x

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