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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Wednesday, 15 September 2010

Give a dog a bone

Ooo I feel just like a bride trailing around my train behind me and having to whip it to catch up with me! Only we are not talking frothy lace and netting, more gawd knows how many yards of plastic tubing which gets stuck under doors, caught on chair legs or wedged between the settee cushions.
I think I scared the oxygen fitter who came to fit the tubing, as when he asked 'where did I want to walk to', I replied that 'as long as I could get to the fridge to get my pimms, I was happy.' Think I might have given him the wrong impression.
Spent what seemed most of the day making tea for people.
Firstly for the oxygen man who drank his very quickly after my remark and shot out the door without even looking back.
Then the TV aerial man who is a very earnest man, but such a boring man and charged me the grand sum of £100, but I have a picture again and I can watch True Blood clearly tomorrow night and not through a snow storm which is fine by me.... Mmmm Eric the Viking Vampire, Grrrrrr.
Next the very nice lady who came to fit the Dog bone, well it's not actually called that, it's called a docobo. It is actually a very clever machine, as it reads your stats, pulse, heat rate and your blood pressure. And it can do an ECG too. I cancelled my trial reading half way through as it went a bit mad like an Etch a Sketch meets a Richter scale when I thought I had broken it and I think a reading like that might have put me in hospital! It also has a defibrillator which is really cool, but she wouldn't tell me how to do that, because she reckoned my eyes lit up too much at the thought of zapping my friends... all in the name of science of course.
Then my friend called round in the middle of all this as the docobo lady and the aerial man turned up near enough at the same time. He was in his element as he quickly started talking about his blood pressure. I think he was angling to have his blood pressure read, but I was wondering if I zapped him, would it speed him up at all?? Then of course in the middle f all this there was the food shop and then the two trips to mothers to feed her, so after all that I fell into a much earned sleep for a while!

I can see the draw back with this 16 hour oxygen malarkey and is that you can easy sit there waiting for your last hour to be up rather than getting up and doing things. Mind you it's easier than tripping over and getting snagged up, so the portable is prefable really for the old mind set. There is a limit to how much day time TV anyone can watch.
I have surprised myself at just how healthily I've been eating the last couple of days, well apart from the danish pastry that Julie brought me. I am determined to lose weight so today I've actually made a proper tasty salad that has filled me up. Todays salad was smoked mackerel with horse radish and tomorrow it's going to be blue cheese and pear with walnuts. Although I be back at work tomorrow so the pear will probably get eaten tuit sweet!
I'm trying though and that's earning me a brownie point with the nurses!

Lots of love Debbie x

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