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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Thursday, 7 October 2010

Blue skies again

The black cloud has certainly lifted and the one that has been looming over me for the last month isn't the only one to shift, as it's stopped raining and the weather is quite lovely today. It's how October should be, beautiful blue skies, nip in the air first thing and when the sun starts lowering, but lovely warm sunshine in between.
So whether it is the good weather today or the good news yesterday I don't know, but I'm not complaining as I feel certainly more positive then I have in a long while.

Mother even ventured over to mine for a morning cuppa, which turned into lunch and then afternoon tea. A tired looking Julie came round too with cream cakes and said that Darren was very close to having his crutch put where the sun doesn't shine with his constant calls of 'mum' every five minutes! She is obviously very glad that he is safe and sound, but I can't help think that it is unfair her running around after him now he's done his leg in from the motorbike crash, when she was so dead against him having a bike in the first place.
The bless her, tonight she is babysitting overnight for a projectile vomitting grand daughter. I forgot how much I hated the smell of sick as I helped clear it off of Julie's sofa! Poor old Julie has another night of hardly any sleep in front of her by the looks of it.

I had my physio done again this afternoon at the new community hospital in Braintree. I haven't bee there for a while as they have been coming to me. I asked Ruth what tests did I have in store for me. Lots, was her answer and that I'd be sick to death of them by the time I got to the transplant stage. Ok, worrying, but Ruth is always honest, no good rose tinted it. I'll look it up on the internet. She said her main aim would be to keep me fit and healthy, so I'm going to start going to rehab twice a week soon. Seems a bit of a paradox having to get really fit to prove I'm well enough to have the transplant because I'm ill and no longer fit. Weird, but I'll do whatever it takes.
I got a text this afternoon to say I have an appointment already from Occupational health. Speedy little movers, I almost felt unwanted. This is going to be another case of everything plodding on and then the music stops and everything turns into a whirlwind of activity.

Lots of love Debbie x

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