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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Monday, 18 October 2010

I'm writing a list

I had a day off today on annual leave and the day just vanished! By the time I did my drugs, had my car serviced, which took 2 1/2 hrs of me sitting there reading a book in a very hot waiting room and had my rehab, my day had gone. I was still cooking my evening meal at 8pm.
I've heard people say that when they retired, they've wondered how they fitted work in, I'm beginning to see what they mean. I've been told that I'll have two lots of physio and two lots of rehab now a week, so that only leaves one working day left free and no doubt that will be filled with hospital visits and tests. I am hoping somewhere along the line to be a lady that lunches Gawd damnit!

I think I am going to ache tomorrow as I haven't been to rehab for a couple of weeks because of illness and clinics and I rather went for it. Well lets face it, when you'll exercising with people of the average age of 70 years old, you're going to think you are going for it even if you're not!
The 3min walk we have to do resembles something out of a prison when we all file out into the yard, although we haven't got chains around our ankles, a lot shuffle along like they have.
I have a horrible feeling that I am going to resemble an Aunt Sally, as stiff as a board when walking around tomorrow.
As soon as I got in the lovely hot bath, my mobile kept ringing and however hard you try to ignore it, you then start worrying that you are missing something important. I normally get a very curt message from my mother, who hasn't got to grips with answering machines yet and normally makes sarky comments about 'Humph I thought you were feeling ill/tired, but your out and about I see!'
No mother I'm in the bath or on the loo, do you really want sound effects, because I can oblige????

My oxygen mother ship has now gone totally do lally as well as I now only have three bars on it, so I have no idea ow much is in it, as it was registering empty all last week. At least I didn't freezer burn myself on it this time though. My thumb is still painful from Friday and that was just the ice on the cloth that caught my thumb, can you imagine what damage you'd do if caught in a blast of liquid oxygen? Mmmm watch out anyone that naffs me off!

Jean called tonight to talk about my leaving do. Gawd... I want a brass band, people wailing and hanging onto my ankles... no what happens if everyone is busy and can't come?!
It's going to be in November and I have to write lists... I love writing lists as I hate bloody surprises. And Sam knows me only too well! Busy busy tomorrow at work then!

Lots of love Debbie x

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