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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Thursday, 28 October 2010

To pee or not to pee.. that is one hell of a question!

Hoping for a better night's sleep tonight, as the past two have been very dodgy.
Tuesday night I couldn't sleep properly because I was worried about going into hospital to pick up my urine collection pot and I was quite right to be worried actually. Firstly out of courtesy I asked the reception desk did I need a slip to put in the clinic basket to show that I was there while I showing the male receptionist the letter from my specialist. The letter which just said to pop into the clinic and pick up container for tests for A, B, C, D, E, F, G, H and about another ten letters .
The chap kept trying to send me off to the ECG department as that was the only part of the letter he was reading and wasn't very happy when I took the letter back to point out the bit about 'Urine collection container in clinic'. He then took it personally and I got a telling off for not having an appointment and that I should tell my specialist to make me one in future. Ok.... Time to ignore them and go straight round to clinic me thinks.
Unfortunately although they were happy to see me in he clinic, they couldn't find an empty container, so I was sent upstairs to the Pathology lab which was quite a distance. God walking around that hospital really knackers me out.
When I got to the path lab I laughed when she handed me the container and said I would need a milk churn for how much I could pee in a day, she just smiled.... Update on that gem later in this epic report!

Last night's lack of sleep was down to our departments Indian Elvis night to celebrate Kate's 60th birthday early. Fab night and fab food... when we got it which was gone 10pm and we arrived at 7.30! So we were getting a tad hungry as you can imagine. At one point I told the waiter that if we didn't get our food very soon, then Indian Elvis would get it when he next came to our table to sing! It arrived and was really lovely food, but I can not eat that late at night anymore as boy did it lay heavy.
And when I did eventually get home, I spent ages trying to find something suitable to collect my pee in before pouring into the container, as I can not aim straight enough to get it into that little opening! I was thinking vases, but then worried that they would pick up some floral disease like Dutch elm etc, then thought tupperware, but I needed all them for my picnics and I don't even think I could do that to my mother! Eventually I found an old bowl that had seen better days at the back of my cupboard and could be pensioned off after the collection.

6.30am I started my odious task of the 24hour pee collection and was extremely glad I wasn't trying to pee in the hole as I must have a crooked pee hole as I peed down my leg, over my hand even with the big bowl and then poured some over my hand again trying to transfer it into the collection container! God no one should be doing this at 6.30am! It's bad enough that I'm getting caught in my oxygen tubing that I'm attached to or tripping over the electrical lead every night without peeing down my leg. If anyone was to look through my bathroom window, my God what would they think to what my mother would say 'Coupeing down' over the old bowl with a breast escaping out my nightie and with tubes hanging out my nose. And I wonder why I'm single!
So far and it's now 9.15pm I have very nearly filled up the container, I have peed down my legs three times, changed my trousers twice and one pair of socks... luckily I wasn't wearing my new slippers at the time!
I hate my life...

Lots of love Debbie x

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