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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Sunday, 31 October 2010

Trick or treat

Day two of not feeling a hundred percent tickyboo and thankfully the clocks went back last night so got another hour to try and get my act together this morning.
I failed miserably and decided against taking mother down to Maldon for a picnic today. It was damp and gloomy out there today which rather matched my mood.
I do hope that my attempts at getting all my tests right on Friday, don't backfire on me now. As example at the end of the walking test, I was asked how breathless I felt and I never know how to answer that as I hate to sound like a wimp.
Do you say very severe, which I was as I was dizzy, hurting across my shoulders and my chest was rising up and down more than a ship on a rough sea with stats of 80 that would be pretty damn truthfully. But then, would I run the risk of the specialist saying I'm past having help and if I don't say I feel ill enough, he might think I'm too well? So I went for the one under severe. Although ask me today and I would gladly be truthful and admit defeat. I feel almost comatosed today as everything is such an effect, I'd just like to roll over and wave the white flag.
But that attitude won't get me anywhere and life goes on.

Decided on going to the cinema late afternoon, as there I can just sit and get totally lost in make believe. It is my haven. I don't think people understand what a lifesaver the cinema is for me. I can't switch off if I try and meditate, but place me in a cinema and I'm in another world, I zone right out.
Mind you driving there was a tad on the scary side, as we got caught in the middle of a police chase and if we had been a couple of minutes earlier, we would have been hit head on by the speeding car that the police were pursuing. Thank God Greta decided to change her boots at the last minute and we were later than we would have been. Both Greta and myself were shaking like leaves afterwards and I'm sure if I had used my Docobo straight after that, my pulse rate would have shot up through the roof!
Made me think again about whose organs might I get. Would I mind if I got some ones heart and lungs who drives recklessly and wouldn't care who they injured or killed on their escape? Once again I wondered would I take on their nasty streak?

Home safe now and sitting here eyeing up a bowl full of trick and treat stuff brought in case children came round tonight dressed as mini witches and devils, but as I live in an OAP area they don't bother with us... to be honest half of the old uns wouldn't even hear them knocking on the door! SoI'm going to have to eat them all myself... Hell how awful, but someone has to do it and I'm just the woman!

Lots of love Debbie x

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