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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Tuesday, 18 January 2011

I have the hump

Before I start, it's not been all doom and gloom today, as first thing this morning I took the bull by the horns and called the 'Jobsekers' people to find out about making a claim for benefits and it wasn't half as painful as I thought. Thankfully the lady on the other end of the line was kind and patient with me. And I surprised myself by getting together nearly all the information that I needed before I started and what I didn't have next to me, I could put my hands straight on it. Me... organised, now they are two words that I didn't think went together.
Later I went out with my daughter-in-law to the garden centre. Ate cake and brought some lovely bits each.
Then 6.35pm a phone call from the doctors... bum all down hill from now on, first infection of 2011 and it's the stroppy cockle one again. What's it been 18 days now since the new year started so I guess it's long overdue!
I suppose that answers a lot of questions of why I've been feeling so breathless in the last week or so, why my back feels like it's been kicked in between the shoulder blades by a donkey and why I have had a rotten headache for days now.
What worries me more is that these feelings are just second nature now.
So oh joy of joys more drugs, so yet another bout of thrush just waiting on the horizon to hit just about the same time as when the antibiotics start working on my chest... yay bloody yay.
I know people that complain that they have to take two tablets a day and with my mother it's like a military operation to make sure she takes her course of drugs and blimey did she have the hump today, but that's another story.
I have to take twenty five various tablets, blasts and vents a day and now I have to chuck in a few more... bummer.
Never mind, bring it on.
I have a CAT scan planned for tomorrow morning and although that isn't worrying me, being there on time for 8.50am is. As I've said before, I can't remember what that time of the day looks like... hell that's going to be dark when I get up! Perhaps I should have asked my son if I could have stayed at his tonight as that would have knocked off at least 20mins. I hate getting up early god damn it.
Yes I have got the hump tonight.

Lots of love Debbie x

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