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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Wednesday, 19 January 2011

Some days you really should stay in bed

You know when you really shouldn't have got out of bed, well that day has arrived. Starting at 6.30am things went very 'pear shape', I went back to sleep I admit, but when I did leap into action I picked up a lot of speed for an old crock.
Unfortunately I hadn't accounted for the heavy frost this morning or my oxygen unit getting frozen on to the mother ship, add on 10 minutes. Nor had I accounted for the time it took me to clear my car windows enough to drive, add on another 10 minutes. Now separately that doesn't sound a lot, but add the two together and you can cover a few miles in 20 minutes especially as I had decided not to go through the flooded parts of Silver End and then I hit bally rush hour... gggrrrggghhh!
Luckily Barbara had actually arrived before me so she could check me in and we could make a dash for the X-Ray department as soon as I arrived. This was the next part and the vital part of when it all went wrong... my scan was yesterday.
It was at that point that I just pulled over and screamed my head off in the car as I attacked my steering wheel and broke down in angry tears. How can they say that when my confirmation letter clearly says... Tuesday the pigging 18th of January. I know when the receptionist called me to make the appointment, she said Wednesday 18th, so why didn't I check the poxy letter when it arrived and then I would have seen there was a pigging mistake and not dragged my weary arse out of bed when my stroppy cockle definitely wanted to stay in the warm!
I then had to apologise to the X-ray department and my specialist's PA, though they both said that they'll try and rush me through and this time I am not to mess it up... that bit I said.
I have met Barbara in some different places for coffee, but Broomfield bleeding hospital has got to be the weirdest especially when we both feel grim!
The only two saving graces of the day was my ex for fgetting my tetracycline for me to get rid of my strep and that my trolley has arrived and it's beautiful.
I didn't ever think the day would come when I got excited about a walking frame, but it is a beautiful electric blue and oh bliss I have a shopping bag and basket on it, get me I'm mobile again!! Thank you to my boys and my daughter-in-law, I love you lots xxx

Lots of love Debbie x

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