Day 2 of 2011 and thankfully feeling much more alert and although I've forgotten what its like to feel normal, I feel as normal as I can be for someone with two shite lungs that don't work properly anymore.
I feel restless, which is definitely normal for me. As I know I can't holiday in places where I want to holiday i.e. Turkey and if they do decide to go ahead with my transplant, then holidaying anywhere could prove limited and difficult while I'm on a waiting list, but I must have things to look forward to otherwise my mojo will suffer quite dramatically and that isn't me being a drama queen.
I think if you have things to look forward to, even just one exciting thing a month is good, then it keeps your spirits up and your mojo keeps on fighting, otherwise you slip into a premature nursing home type coma. I love the planning of events, what I'm going to wear, how am I getting there etc even if the planning puts me into a state of panic with how much oxygen and how many drugs will I need, but at least I feel as if I am in control and not the disease in control of me.
I had mother around for lunch today. She hasn't been outside her bungalow since Boxing Day as she had felt in pain with her arm and consequentially felt depressed and she had slipped all too easily into wearing her dressing gown all day. So some heavy duty nagging was put into place by yours truly.
Yesterday was step one where I got her to get dressed in real clothes and helped by me putting her dressing gown into the washing machine. Dirty tactics I know!
Today we ventured out to mine and although she enjoyed being over at mine for lunch, she was exhausted by the time she had walked back again and needed a glass of brandy to settle her. I am my mother's daughter when it comes to brandy! But this proves my point just how easy it is to slip into the easy option of sitting around and waiting for life to come to you.
Ok there are days like yesterday when it was a much needed rest day. I am learning to read what your body needs, then to regroup and to get ready to come back out fighting again.
So I'm taking mother's advice now and off to have the Jones/Burden medicine... brandy and lemonade... I'm not hard enough to drink it straight like her just yet, after all she is 93 very soon!
Lots of love Debbie x
About Me
- Me...Debbie Burden... or known as Burders
- I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!
No comments:
Post a Comment