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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Friday, 4 February 2011

Cream teas and bubblebath

A rather busy day yesterday not doing much, just seeing new and old friends, but it left me exhausted all the same.
Day started with meeting the new Chaplain's wife for morning coffee and cream scones, yum and she is lovely. Probably as scatty as me and where I can talk for England, she was doing it for New Zealand, being a kiwi herself. We got on really well, so it will be nice to take her around to visit my favourite coffee haunts of Essex. I drove her around about five or ten miles more than needed too as I lost my bearings again at one point.
Not hard for me to do, as I seem to spend my life just lately either uttering the wrong words or forgetting what I am doing. I know I'm still taking ages getting over this infection and the lack of oxygen is making me more dopey than normal, but I worry myself at just how woolly headed I am at the moment.
Later on one of my old bosses popped in to see me on her way from Ipswich to Sussex, which was a pleasure. She looked really well, in fact the best I have seen her in ages, so whatever she is doing, it is doing her a power of good.
After all this catching up, I locked the bungalow up, pjs on, poured myself a brandy and had to fight against drifting off to sleep on the sofa when watching TV. As it was I went to bed at 11pm which for me is unheard of.
I was woken up a couple of times by the wind, which had really got up through the night.
Where I sleep with my bedroom window open, it kept blowing my bedroom door shut, where the extractor fan in the bathroom was letting the air through it kept blowing my bedroom door open! After lying in bed worrying that my oxygen tubing may just get cut in half by all this coming and going, I finally got up and stuck a cushion in the way to soften the blows. This is when I heard the banging outside.
Dammit, my neighbour must have left his gate open when he came home from the pub. Well little I can do about it, so eventually I drifted back off to sleep just getting used to the banging and crashing outside with the help of a pillow over my head.
Imagine my shame when I looked out my bedroom window this morning and realised it was my gate that was the culprit! I sneaked down the garden and locked it again, hoping no one noticed it was mine.
Still feeling rough again today and had the nurse on the phone checking up on me, as the Docobo has been reporting through to their office, dodgy stats and heart rates again. Until I get my results from the hospital lab back, I've been told to rest and do nothing... yeah right!
So I have brought magazines and will do my best to rest and do nothing, but I guess that's as likely as me becoming a Page three glamour model.
Ooo funny I should say that, as I was photographed today for the 'Greenfields Community' news letter whilst standing in my bathroom. I should point out there wasn't a strategically placed bath sponge or shower curtain covering my bits in sight, as I was fully clothed at the time. Maybe the offers will flood in now!?

Lots of love Debbie x

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