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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Tuesday, 15 February 2011

Rise and shine

I had to get up early this morning as I had a text from the heating engineers to say that they were coming round this morning to sort out my gas problem.
Not a hundred percent sure why they are coming round today as Mr Geniality, the engineer that came out Friday didn't say they would have to come out again.
Of course they didn't come out, so I suspect some other householder was either woken up early or missed their appointment because they sent the text to the wrong person or maybe Mr geniality read my facebook on Friday and took offence at me being rude about him!

Come eleven o'clock, I could hardly keep my eyes open and when Julie came round with a yummy stew for my dinner, it was a case of me trying hard to get my brain into gear, trying to get the correct word out and trying to create a sentence that actually made some sense.
I tried to leave my oxygen off for a couple of hours again today to give my nose and ears a break. Having 24-7 oxygen really gives your nostril lining the comeuppance and your poor old ears ache where the tubes fit around them from either standing on your tubing or getting it caught under doors or wrapped around your body in your sleep.
Ripples in a pond.
I don't think I'll drive over to Maldon tomorrow for physio, as it would be my first time in over a week of me driving and my head really hurts after physio. Put the two together and not a good total.
Still I look so much better and feel a lot better, so not long now till I can go out and about again.

Spoke to an ex boyfriend tonight who is in Saudi Arabia working. Every time he asked how I was, I skirted around as I didn't want him to think I'm always ill. He knows all about my illness, but I don't think he actually realises what it involves. The last time he saw me, I was a size 14 and very bouncy. Ok I was coughing all the time, but I've now morphed into this old woman in the three years since I've seen him. Even I don't recognise the woman in my photos at times. Never mind, it's not like I'll ever see him again.

Lots of love Debbie x

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