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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Monday, 21 February 2011

Day one of a new start

Really must start going to bed earlier, as 1am is now slipping into 1.30am and later, and I like to read with a cup of 'sleep easy' tea before lights out. My hours are slipping into bad habits somewhat since I was ill, I'm getting up and going to bed later. I must try harder to get back into a decent routine.

Had a really good and productive day today though and I'm beginning to feel more confident every day now. Not quite got all my spark back, but getting there.
Got Julie to come to Braintree with me to start getting Natalie's 30th birthday present together at long last, the poor lass will be 31 at this rate!
Julie elected to push me around Braintree as we only needed one shop, but what we thought would be a quick in and out job, turned into a bit of a mystery tour as the shop I needed had closed down.
It was freezing out there today and Julie warmed herself up by the route march around Braintree town pushing me in my heavy old wheelchair. There's no way I could have handled walking that far today.
Still I got what I came for, well as near as damn it and then we went on to Freeport where I got my trusty 'go faster' walking frame out to help me and give Julie a rest. We were quite refrained though and only went in three shops total and of course one coffee stop!

Looks like the hospital visits are back on track again, as I got an appointment in the morning post to see my specialist for the beginning of March. That's one biggie a week again for a month, which is good as it all had gone very quiet for a while.
I wonder what he will decide when I see him? Yes we go forward to Papworth or no we wait or no I'm past it?
Also got a letter from the benefits office wanting my three latest wage slips. One, which is my very last ever from work, they already have and I managed to find November's and December's wage packets after a bit of a panic. I am quite organised believe it or not and can usually put my hand on any paperwork in my bungalow, but occasionally things do give me the slip!
I didn't even try and get them photocopied, as they had given me a very quick dead line and I would have had to drive into Braintree yet again to get them copied and even then I don't know where I'd go. Maybe they think we all have photocopiers in our homes?

Few more jobs for me tomorrow, as a waterfall coming from my overflow pipe stopped me doing all today.
Should have taken my sputum sample into the hospital, but it wasn't forthcoming when I was in town and when it was, the plumber was at mine fixing the tank, still I'm at the hospital anyway tomorrow so no worries.
Ah well lets start my new regimen and early to bed!

Lots of love Debbie x

1 comment:

  1. Hi Debbie

    I went with my Mum to Papworth, and though she didn't survive much longer sadly, the initial visit was really good. They spent lots of time with us, we met everyone involved and we could ask as many questions as we wanted.

    It felt like how we'd all want all NHS services to be if there was plenty of money to go round, and all the time in the world. I'd definitely recommend going to see them so that you can see what they can offer and make the best choice for you.

    Hugs, L xx

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