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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Saturday, 12 February 2011

Sleeping not so beauty

Did I leave my front door open last night, as I swear I have been trampled on by a herd of wild horses or wildebeests?!
My neck is so stiff, I guess from having my shoulders scrunched up permanently up around by my ears.
And I am sure if I was still living in Braintree in my little old cottage, I would sleep right around the clock. It's only the fact that here I have lightweight curtains plus peace and quiet and there, I had thick blackout curtains to aid sleep. Thankfully here I do wake up when my bedroom fills with day light.

Ruth says I'm feeling stoned because of all the drugs I'm on at the moment and she's quite pleased, as it's stopping me from going out instead of resting up. If I had gone into hospital, it would have been 10days of enforced rest, so I have got to do the same here apparently. I thought I had been taking things fairly easy, but Sadie described it as a wake up call the other day, but I'm not sure from what as my social life isn't that dizzy anymore.
I have had my fair share of visitors which has been lovely. Always lovely to see my boys, but lovely to see my friends too.
I do miss seeing my mother and that worries me that we aren't seeing each other at the moment even though we live opposite each other.

Actually got my letter with my appointment for my CT scan this morning and the weirdest thing is, it's totally different from the last letter I had. This one says I have to be there an hour before my appointment time to drink the contrast liquid and two more pages about what happens.
It does make me wonder if I had turned up on the correct day last time, would they have seen me at all, as I wouldn't have time to let the liquid get round my body???
I think a major cock-up all round last time and I gave them the excuse to blame me?!
My brother-in-law said he'd take me this time, so all I have to worry about is getting ready at the crack of dawn... Bliss!

Lots of love Debbie x

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