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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Tuesday, 1 February 2011

The gloves are off... I mean on

I am sitting here looking like the 'Boston Strangler', wearing my black leather gloves indoors. God my hands are so cold!
I've had to take them off while I type, as I'm making far too many mistakes when hitting the keyboard, but believe me this will be a short one tonight as I can not keep my hands warm.
Why, why, why?!

Today started ok. Up early... Oo get me!... as I had 'the' man coming to clean my cooker. He does an amazing job, especially as he doesn't use smelly chemicals and I've only had to quickly clean my oven twice since he did it last this time last year. Plus he got off all the melted polystyrene balls residue from when I accidentally melted my squishy lap tray on the hob a few months ago!
Ok the front door was open a few times where he was going back and forth to his car, but not enough to freeze me.
Lynn and Jack (my saviour) came to finish off my pension claim, which is now winging it's way to County Hall by special delivery. We did have lunch in an old pub, but we were sitting near an open fire, so can't be that.
I had my oxygen assessment at the Community hospital this afternoon and it's always as hot as hell in there, plus I had a mug of green tea to wrap my hands round while I was sitting there, so can't be that.
I have to say now, that I was a bit worried when we were talking about my pensions and I said that I hope to be around for at least another ten years yet to spend it and they started behaving shifty and looking at the floor after saying that's important that I should have things to look forward too!
Ok worrying, but I'll quiz them more in six weeks when I have to go back for another assessment, as I was borderline for having my oxygen intake levels upped. Maybe shock???

Reni put a colour on my hair so I looked glam for the photo shot on Friday, but my hands didn't touch anything cold. And I was really pleased with my new look again, so definitely not that.
So I guess it must just be tiredness again. I'll quiz them tomorrow as I'm back for more physio at Maldon tomorrow... have phlegm, will travel!
Gloves are going back on now... bye

Lots of love Debbie x

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