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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Friday, 10 June 2011

Flaming June

Hoorah... I slept right through the night last night and it was lovely, I feel a different person.
I think ferrying my two sons to and fro to their friend's wedding venue at different times of the day and then picking them up late at night helped. It kept me busy throughout the afternoon and when I got home from dropping them off safely at their homes after midnight, it was straight into my bed with a magazine and a chamomile tea and sleep came quite quickly.
Keeping my late hours does come in useful at times.

Today was overcast and not very inviting, so I poodled around my bungalow keeping myself busy doing housewifely things such as ironing and sorting out kitchen cupboards. That part meant throwing all the bits into the bottom cupboard and I'll deal with that one when I'm feeling a lot stronger!
I am such a domestic goddess that I even cooked myself a proper healthy lunch at midday.
When I think back to last year when I was so worried about having to give up work, it all seems a life time ago and I really wonder why I put myself through so much grief trying to get work each day, working full time and while feeling so ill.
Ok, it's scary knowing that I'll never have a proper wage packet ever again, but my stress levels have gone down on the pressure scale so much.
I can't even imagine what state I would have been in if still working full time with this end stage lung disease and dealing with mother and her imaginary friends, Shirley and Dolly!

Tonight was a different kind of treat for me through, as Jo, Julie, Ann and myself went to see 'The Taming of the Shrew' performed by a travelling Shakespeare Company at Cressing Temple Barns.
Of course being flaming June, I had on a long sleeve t-shirt, a tank top, a cardigan and a jacket, plus a big scarf around my neck, with a woollen poncho on standby. Thick corduroy trousers, long woollen socks and boots, plus gloves in my handbag as back up!
A thick blanket actually wouldn't have gone a miss either, but we are British and are used to our very capricious summers. Plus the cold was a bonus for the company, as the more you clap, the more it warms you up and the actors love it too!
Also Shakespeare gives your brain a thorough work out with trying to work out who is who and not to mention trying to keep up with the actors changing their roles throughout the performance, that kept me alert and warm too.
Everyone a winner... and the wine helped too.

Tomorrow is the first carnival of the season. Whether I go or not depends on the weather, as heavy rain is fore casted.
At least the egg timer has disappeared from my mind now since talking to my consultant on Wednesday and I won't worry as much about time racing past as I look forward to the different events for the summer months.
I feel at ease for the first time in ages.

Lots of love Debbie x

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