About Me

My photo
I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Friday, 24 June 2011

Whoop Whoop!

I'm writing my blog early today, as from having nothing to say yesterday to plenty to say today. I want to announce that I am no longer a lady in waiting... My letter from Papworth has come!
Whoop Whoop! Hoorah and Yay! I have been doing a little victory dance around my front room... Ok slight exaggeration, more of a punch the air a couple of times of dance. And then I burst into floods of tears!
Yep I am a big girl's blouse as they say.

I did go out last night to my friend's niece's boss's Jamie Oliver home ware party, but as it was up a flight of narrow stairs. To say that they got the better of me was an understatement and made me feel quite lightheaded and I was so knackered when I got home, that I really just wanted to sleep rather than blog I'm afraid. Besides I was still on a real low.
I went to sleep after having a serious chat with my guardian angels about 'sorry I was behaving like a spoilt brat etc and I know I have a lot to be thankful for etc' and I know a lot of you must be thinking I have totally lost the plot, but I think you have to believe in something and this is my choice.
Anyway I was reading a recipe when the post came and there in amongst a whole load of other post was my letter. Papworth 25th July 2.30pm for a primary assessment and discussion.

24th July, I will be praying like a good 'un to my angels about stopping myself from screwing it up by saying the wrong thing at the interview... perhaps I better leave my guardian angels watching over me out of the conversation for starters!
But I have to strike a careful balance between being ill enough to having it done, so I mustn't be too vain/bloody minded and I have to admit that at times i have to concede defeat. And then on the other hand being too ill to have it done and going on a day like anyone of the past few days where I've felt so grim that I could have easily thrown in the towel. I am worth the effort Papworth honestly.

I am on such a high at the moment. Julie couldn't believe how much difference just one letter could make to some one's spirits, but even getting this far is like winning the lottery. I know I have got a long journey in front of me now and there will be a lot of tears along the way. Plus there is no guarantee that I'm going to get a transplant at the end of it all, but this one letter has filled me with so much hope.

I'm going to going to watch a 'Burlesque Night' tonight and who knows, I may even join them on the stage!

Lots of love Debbie x

No comments:

Post a Comment