I'm writing my blog early today, as from having nothing to say yesterday to plenty to say today. I want to announce that I am no longer a lady in waiting... My letter from Papworth has come!
Whoop Whoop! Hoorah and Yay! I have been doing a little victory dance around my front room... Ok slight exaggeration, more of a punch the air a couple of times of dance. And then I burst into floods of tears!
Yep I am a big girl's blouse as they say.
I did go out last night to my friend's niece's boss's Jamie Oliver home ware party, but as it was up a flight of narrow stairs. To say that they got the better of me was an understatement and made me feel quite lightheaded and I was so knackered when I got home, that I really just wanted to sleep rather than blog I'm afraid. Besides I was still on a real low.
I went to sleep after having a serious chat with my guardian angels about 'sorry I was behaving like a spoilt brat etc and I know I have a lot to be thankful for etc' and I know a lot of you must be thinking I have totally lost the plot, but I think you have to believe in something and this is my choice.
Anyway I was reading a recipe when the post came and there in amongst a whole load of other post was my letter. Papworth 25th July 2.30pm for a primary assessment and discussion.
24th July, I will be praying like a good 'un to my angels about stopping myself from screwing it up by saying the wrong thing at the interview... perhaps I better leave my guardian angels watching over me out of the conversation for starters!
But I have to strike a careful balance between being ill enough to having it done, so I mustn't be too vain/bloody minded and I have to admit that at times i have to concede defeat. And then on the other hand being too ill to have it done and going on a day like anyone of the past few days where I've felt so grim that I could have easily thrown in the towel. I am worth the effort Papworth honestly.
I am on such a high at the moment. Julie couldn't believe how much difference just one letter could make to some one's spirits, but even getting this far is like winning the lottery. I know I have got a long journey in front of me now and there will be a lot of tears along the way. Plus there is no guarantee that I'm going to get a transplant at the end of it all, but this one letter has filled me with so much hope.
I'm going to going to watch a 'Burlesque Night' tonight and who knows, I may even join them on the stage!
Lots of love Debbie x
About Me
- Me...Debbie Burden... or known as Burders
- I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!
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