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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Thursday, 9 June 2011

Welcome to my dream home

Hell, I hate it when I'm right. Did I not say last night on this blog, that I probably wouldn't be able to go to sleep again after the day's excitement?
Well I was right.
I was so mentally and physically tired last night, but I still found myself cleaning my kitchen blinds at 1.30am, trying to empty my busy mind so I could go to sleep. You know when you have eaten too much sugary stuff and have a sugar hangover? Well that's how I felt, lethargic and washed out, but unable to switch off.
But when I got into bed, my brain was full to bursting point of what I should have said, what I didn't say and what I should have asked him and the questions wouldn't cease going round and round in my mind.

Questions such as;-
1; Did I make it crystal clear when he asked me, that on a good day with the help of my 'go faster' wheeler and my portable oxygen, that yes I could actually make 200 metres. But I would have to sit for ages to recover from all that effort, but yet the very same day, I might not be able to make 10 yards without my head and chest trying to burst open?
Everything changes hourly.

2; Did I make it clear that although my last oxygen levels at the oxygen assessment clinic were higher than my normal, that my daily 'Docobo' readings were more low than the higher end of bad on a regular daily basis? And that I was relying on my oxygen more than normal just lately?

3; Did I make it clear that I was so tired all the time now and that I struggle on a daily basis? Or that my words were quite obviously muddled when talking just lately?

I don't think I did on any of these.
Must try harder next time.

When I did finally go off into an undisturbed sleep around five in the morning after yet another visit to the toilet, I had the most weirdest of dreams.
I was back at my old house where I was brought up. My eldest sister and my mother, who just happened to be in the bath and was sporting an American accent... must be Dolly Parton's influence again... were both there with me, looking just as I remembered them when we lived there.
Though I must point out that my mother has never had an American accent, on the count of her being Welsh!
In this dream, I was having trouble locking my dad's office door that led into the yard, which I often did, as my dad often sent me to check it was closed. I remember in this dream that I was pulling the huge big bolts on the top and bottom of the door tightly shut. This door was the other office door, but this one led into the house. I did this before racing back upstairs to bath mother.
The weird thing was about this scenario, apart from the fact my mother had turned into an American, was that she was fully dressed in the bath and I was about fifteen, though we had moved up to the village when I was about twelve.

I always used to help my eldest sister in the bath when she was pregnant. She regularly needed help getting up out the bath as she was like this huge beached whale... in real life not the dream... which looking at her nowadays is hard to believe as she was always the skinniest one in the family, but mother made me promise that I would watch over her, so I did.
What good I'd do is beyond me, as I was a skinny little runt then and if she fell, she would undoubtedly suffocate me and squash me to death!
But there were so many things that I could see in my dream last night, that were so precisionly correct, even down to the cold feel of that huge old lock on my dad's door and that special musty smell coming from my brother's bedroom which led off from the bathroom.

I'm not sure what this dream meant, but it was comforting seeing around my old home again and at least Shirley Bassey didn't leap out my brother's bedroom singing 'Gold finger!' Believe me, if it was my mother's dream then she and Dolly would both definitely be in it!
Maybe that was what I needed last night to feel old comforts?

I'm hoping tonight I will be tired out enough to sleep, as apart from closing my eyes while mother was chatting about 'Midsummer Murder' repeats, I haven't slept and I have to pick my sons and Reni up from a wedding later. If I continuously go to bed late, then I might as well make myself useful.

Lots of love Debbie x

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