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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Sunday, 19 June 2011

I have the monk on

Aren't nights long when you can't sleep?
My brain was buzzing from the new tablets and my damn legs kept twitching from restless legs syndrome. I spent most the night rolling from one side of the bed to the other looking for cool spots to try and keep my legs from aching to let me go to sleep and stay asleep.
It seemed like I was awake for most the night and I hated it. It was as if I'd be asleep for ten minutes and then stay awake for another twenty while my legs went 'hello, I'm here, can you feel me?!' I counted seven of these episodes and I can remember it being pitch black to dawn light and even brighter. In fact I was pleased when it was time to actually get up.

I've decided to stop the statins until I have a word with my local doctor and see if there is another sort I can take, as my left arm aches like hell and my specialist said to stop taking them if that happened.
I would just get my legs to sleep and then my bloody arm as I rolled over on it! As my right shoulder is duff already thanks to carrying my oxygen unit about, I don't want to knacker another one too.
Another moan, also the amount of times that I have trod on my oxygen tubing over the last two days... making my sore ears even bloody sorer than they already are thanks to the new nose specs...you'd think I have dyspraxia!
Blimey O'Reilly I'm a miserable old crone when I can't sleep.

I have been a grown up again and cancelled going to Blue Waters with Jo tomorrow. I know I can't physically go as I feel like a wet lettuce, but it doesn't help knowing that you are being sensible when turning down something normal like a shopping outing. Plus it's been eight years since I've been to that shopping mall. It comes to something when you've not got the energy to sit in a poxy wheelchair and have someone push you about.
I have got the monk on today I am sorry. So I will sit and drink my ginger beer... to stop me feeling nauseous... and cry into it.
Hopefully tonight I will sleep and I will be all fun and follicks tomorrow.
Till then... Sorry.

Lots of love Debbie x

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