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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Friday, 17 June 2011

Old crocks night in

Well the day started off alright, but it went down hill rapidly to where I am now sitting typing this with my hoodie on and a shawl wrapped round me and I'm still shivering.
I was supposed to be bungalow bound anyway today as my wheelchair was being serviced and as Jean was coming over for morning coffee, I was quite happy to stay indoors especially as the weather was so foul out there. But I was beginning to feel quite rough.
As the day went on it was evident that the wheelchair fared better than me I'm afraid.

Strangely enough I'm not coughing up anything, but I do feel like I have a brick on my chest.
Sadie called me while Jean was here. She told me that the microbiologist at Broomfield Hospital has decided that I'm to start on Ciprofloxacin for the weekend, but all of my drugs could change next week as there is something else growing in my culture rather than my normal ever present pseudomonas, which is a pain in the bum at the best of times.
The reason that she could change all of my drugs, as Hannah explained later, is that she feels that maybe the pseudomonas needs a bit of a shake up and that infections are getting a little too comfortable in there.
I don't mind as long as they do not change me to Gentamicin, as they makes me feel absolutely dreadful.

It's sad really that I can't even remember how I felt before all this started, it's amazing that you adapt so quickly to being unwell and that the way you feel just becomes the norm and you get on with it.
The other day when I was driving home from the garden centre, I had smiley memories of the joy of cycling down that same country lane in the summer. In fact I used to cycle everywhere on my big old white bike with the basket on the front and some of my friends reckoned that I resembled the character from the 'Wizard of Oz!'... bless them.

I had an extra session of physio from Hannah this afternoon, a rather good one as it happened as she had taken a new hay fever tablet which had made her in her own words, hyperactive! I think she was disappointed that I only had one set of lungs with the amount of energy that she had to empty them and empty them she did. I should be pounds lighter after that lot come off my chest.
Hannah did notice that my phlegm, I'm ashamed to say, had a very weird smell so goodness only knows what is brewing inside my lungs this time and thank goodness that she has a strong constitution.
The news from the microbiologist was a bit like a double edge sword. I'm fed up that I have another exacerbation, but on the other hand I'm relieved that there is something else down there, because I'd hate the team to think that I'm a wimp and just got the female version of man flu!

But after my physio session, I fell asleep on the sofa and woke up shivering, aching from my sinuses down and oxygen levels of 81. Not great.
So tonight I had to be a grown up and wave the girls off to Lynn's and have a night on my own in front of TV which keeps breaking up because there is a monsoon outside my bungalow. Very early to bed for me I think and hopefully the new drugs will kick in and all will not be lost this weekend, because I did have plans to see friends tomorrow for lunch. Hopefully a miracle tomorrow?!

Lots of love Debbie x

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