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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Tuesday, 14 June 2011

Sheets 1 - Debbie Nil

Please shoot me if I ever get any more bright ideas.

Even though when I took my stats this morning and my oxygen levels were only 86 again, I still thought that it was a great idea to strip my bed and wash my sheets. Even when I heard a little voice in the back of my head shouting 'You are having a laugh, you can not do it!'
I was still determined to have a go.
Nowadays I find that 7 of 10 times, I have to have help to change my sheets and only normally will I try and do it myself when a) I have no option, but I know help will be round or b) if I am feeling lively and can do it at a slow speed.
Yes, this morning my sheets had a certain bouquet about them from some heavy duty sweats last night and yes it was lovely and sunny out there, but it would have been best to make sure that I had back up before starting.

Sheets were off, but my was head swimming, blurred vision and I had heavy breathing that would make a pervert jealous!

Why do I do this to myself? Is it so hard to admit defeat at times?
The very thought of struggling with the duvet cover, just sent me into a panic attack and I decided to call a halt to my ill-judged, doltish bravado and that I would see how I felt as the day went on or send for help.

I didn't feel an awful lot better actually. I went for my physio at St Mike's and Sadie decided to send another sample off to the hospital laboratory, as what I was coughing up would make Shrek green with envy and my oxygen levels were still low.
Whether it is hay fever, a summer cold or another infection we will have to wait and see. But there are lots of nasties going around or so I'm told.
Either way I had a serious blocked nose again, alternative hot sweats and cold spells and a stonking headache.
Hopefully just a bad day and tomorrow will be better.

The cavalry came at night in the shape of Ann, who was on her way home from Scouts and after a blatant bribe of a glass of Pimms and lemonade, she finished making my bed for me.
I had got a second wind just before she came round to mine and I had managed to get the bottom sheet and pillow cases on by sitting on the bed and just going very s.l.o.w.l.y. But she arrived just as I had thrown in the towel and was sitting on the bed contemplating who to ring in a SOS call.
So while I got my breath back, she finished it all off by putting on a fresh cover on the dreaded duvet for me.
Maybe it was the Scouts 'Bob a Job' week as she was really bouncy as she did it!

I just have my patchwork quilt made me to wash now. Do I attempt it or do I send it off to be laundered? Either way, it's supposed to be wet again for the coming week so I have time to make up my mind and get my strength back.
Cheers Ann for making the bed, are you going past any launderettes?!

Lots of love Debbie x

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