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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Monday, 13 June 2011

I am a tidal wave

I feel a bit like an in coming tidal wave on a badly cared for beach.

I think my oxygen tubing has been twisted and turned, caught under doors and around door knobs so many times over this past year, that it has now got unruly. As I walk it twists like an angry snake and it ends up gathering things in my wake.
The other night when walking from the far side of my bed to the toilet, I had gathered one stripey sock, a half empty box of tissues, one slipper and the top off my spider catcher where it catches things and knocks things over!
Just like a wave gathering all the flotsam and jettison.

I spend a lot of my day retracing my steps as my tubing is always getting stuck under doors or caught on something or other. I long for the day when I can just walk gathering things in my hands rather than dragging them accidentally behind me or doing tremble journeys, once to where I'm going and then back to free myself from whatever I'm caught on and then forward again.
I am beginning to think that my dexterity has been stolen by a distant relation of the tooth fairy who suffers with permanent bad attitude and that she has sprinkled me with blunder dust as a sick joke!
I was always scarily clumsy around my periods, but this is verging on the ridiculous now, especially as I started my menopause about four years ago.

I had another rather low key day today which is good as I need to recharge my batteries.
I am trying to eat sensibly again, as my appetite has been a bit hit and miss just lately. Yet another thing I forgot to tell my consultant... duh.
Saturday I hardly ate and yesterday I had breakfast bran cake at the supermarket while I was waiting for my ex to finish his shopping.
Then a small chicken lunch with fesh vegetables that I cooked at mother's to ensure that she ate hers and then off to the Chinese in the early evening with my sons. A thank you for being their taxi on Wednesday.
I like being a taxi for them as I still feel useful and that I am in control of my life when I'm behind the wheel of a car. Alright I'm still breathless, but it's something that I can do for me.
But hey being spoilt is always good isn't it?!

Lots of love Debbie x

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