Poor mumma

Hoorah... reprieve! Either the info that I had got off the Internet was out of date or I had got the drug name wrong... more likely the latter!... but I don't have to go into hospital for IV treatment if they do have to change my drugs after all, as I can take it via my vent stream the same as my Colomycin.
I found this out by having a crisis this morning, as I only had 5 days worth of Colomycin left in my medicine box and it takes 3 days to order from the hospital. So what to do? Do I order more or if they do change my drugs, wouldn't I be wasting NHS money?

I called Ruth, my head physio and all round wise one and asked her advice.

Ruth in her wisdom said in a very serious voice, 'that it was very sweet of me to try and save the cost of a box of drugs, but that was nothing compared to the cost that a transplant was going to cost the NHS.'
I guess a bit like piddling in the ocean!?
But the good news was that she had already told them that there was no way that I should be going into hospital to have IV treatment, as I was perfectly capable of taking them through the vent stream.
Love you Ruth.
There is nothing worse than spending 10 very long days in a ward full of sick people, just to be administered an IV drug four times a day. I offered to do it myself at home on one occasion as I was so bored in there. I used to go and sit in the rose garden in the sunshine reading, but I got carried away talking to people out there on one occasion and was out there for over three hours. Unknown to me, I had triggered off a major panic in the ward, because they thought I had legged it. One of the canteen staff asked me as I sauntered in there for another drink, if I could come with them to speak to someone on the phone as I was wanted. The ward sister had put me on the most wanted list and she gave me a right rollicking on the phone and I was told to get myself back to the ward pronto as they were 5mins away from alerting security... Oh bugger!
They confiscated my slippers after that!

I had to take mother to have her blood test taken today. We picked my sister up on route as she was going to push her around the hospital in my wheelchair as I can't manage mother and myself there on my own.
To me it was just a routine blood test, but to mother it was the worse thing that had ever happened to her and she sat quietly crying in the waiting room, bless her. I suppose looking back, I've only ever known her to have blood tests twice in the last twenty years. I guess I have got so blase about hospitals and having acupuncture for many years, that I've forgotten that for most people, blood tests are completely out of their comfort zones.
Have I become a patient and not a person?

Still mother was rewarded with a lovely lunch in the very smart restaurant in St Mikes and followed by half a shandy in the beer garden at our local pub.
I think she has got to do this all over again next week poor soul, hopefully it will be less stressful for her.

Lots of love Debbie x