Pass the cellotape for my mouth please

Crap...I've always said if I had a brain I would be dangerous, but I would really like to take one out for a test drive now and again.
I seem to have spent the weekend wrapping and not just Christmas presents, but myself in tangles most of the time.
Yesterday morning it was presents to be wrapped around Jean's house and luckily we got everything done before my time ran out, as I was suppose to be at Chelmsford within 15mins of finishing the last card. I as I don't have a time machine and I'm no longer known for being speedy, I set off thanking the gods for the day I got a car with a built in phone.
I did a couple of quick apology calls up front for being late, until Sam pointed out that I was in fact an hour early as I had got the timings wrong. Ok first mistake of the day.

Evening time it was off to see Mrs Christmas, or commonly known to us as our mate Lynn. There are some people in this world that actually adore everything Christmas and she is one of them, from making her now Christmas cake to putting mini Santas everywhere.
The decorations in Lynn's lovely little cottage have been up inside and outside since the 1st December and in every room including a rather jolly Santa toilet seat in the bathroom!
The whole experience is guaranteed to make you smile...
Which was much needed as the hour before leaving for Lynn's had been a bit fraught as Oliver wanted to ask a few more questions regarding getting everything correct in preparations for getting to Papworth when the call comes, while he was balancing on a chair trying to get my Christmas tree down from my attic.
Where I used to see Oliver on a daily basis when we worked together, we now have to grab any moment we can and as normal when you are trying to have an in depth conversation, the phones keep ringing.
Nowadays if my home phone rings, my heart does still have a habit of leaping into my mouth and tonight it rang dead on cue while I was going through the contact procedure again with him...they will try my home phone first, then my mobile, then his mobile etc... and the pair of us very nearly fainted!
So more apologies to my girlfriends in the car going to Lynn's as it was them who had called me with various questions.
I didn't think I looked stressed, but I must have done so I apologise now for that too.
I didn't sleep well last night again, as I was running through my faults again in my head so it was pretty busy in there.

I'm going for a much needed chill out at a spa tomorrow, which will be my whole 'one night holiday' for 2011!
I brought a voucher six months ago and although I was going to use it in September, things took an unexpected turn of events in my friend's life who I was going with and it has looked like it wasn't going to get used at all until about two weeks ago, when I sold it on for us.
Since then this voucher has been going backwards and forwards and now the voucher is back in my court, so I have been talked into going with another friend and I will try and put all my worries away and enjoy it before it expires next week.
I will need a rest after I've loaded up the car with the oxygen concentrator, oxygen back pack units, nebuliser, drugs, Papworth emergency case and my normal overnight case for the spa.
I won't even be gone for a whole 24 hours, but I might as well be going up Kilimanjaro with the amount of stuff that I'm taking and how my nerves are on edge.
I just long for the day when I can go away with my girlfriends for a whole week and not be frightened of my own shadow.
So if I have upset anyone in this past week because of my jangly nerves, I apologise profusely and for those that I haven't upset, I'll sincerely apologise now, because I'm sure I unintentionally will do before the week is up!
If I have any friends left after I have this transplant, it will be a miracle!

Lots of love Debbie x

ElvisDebbie has left the building

Hoorah the Thursday curse has left the building, so much so that I actually didn't know what day of the week it was!
Hoorah, happy days are here again. I really didn't enjoy having a downer on Thursdays, but that was how everything had got to me. I didn't realise how grumpy I had become.
I guess I've settled down into this new phase in my life and life is slowly returning back to normal or normal for me at least. Which of course to most people after my various ranting, would have them thinking that I should be locked up in an attic where I could be seen and not heard!
As I'm no longer waiting to go 'active' as I now on the 'active' list, I can relax a bit and I am now sleeping better as I'm no longer laying awake half the night waiting for this call and a night's sleep is a wonderful thing, believe you me.
I've now settled down into realising that the call will come as and when, with me crossing that particular worry bridge when I get the call and not before.
No doubt when the call does come, I'll be throwing up with fear and probably lose all control of my bowel and bladder simultaneously...yeah a regular Friday night ahead then!

I had a really good day today, as two of my old friends came down from London to see me again and to treat me to lunch out...bonus.
Had a very lively catch up over a very scrummy meal with lots of laughter and reminiscing again over old and new stories. It is lovely to be able to fall in with old friends and chat like neither of you have ever been away from each other. We lost contact with each other for over twenty years, but she tracked me down via a newspaper earlier this year and now we try and see each other once a month.
We did have to miss November as I was bouncing a bit off the wall that month... on the Richter scale of being highly strung, I was off the chart!
So now things are getting back on an even keel thankfully.
Yay...the moanie Debbie has left the building...or has she???????

Lots of love Debbie x

Henchman in yellow pages??

Wanted...One medieval rack and henchman if possible. Will accept second hand, but must have instructions if it doesn't include a henchman.
This is what I feel I need at the moment, a damn good stretching, as my neck and the base of my back are giving me a bit of gyp this last week. I think it's down again to carrying my oxygen unit on my back day in day out for what seems like the last hundred years or more.
I had to have a lot of quite painful physio on my arm and shoulder a couple of years back from where I used to sling the unit over on one shoulder to carry it and ended up with an impinged shoulder cuff or something equally weird.
But once I got that arm back to normal, I always made sure that I carried the weight equally across my back, because as I said the treatment hurt as much as the impingement and I was not going through that again in a hurry. It was only the fact that the physio was rather gorgeous and I didn't want to make myself look a wimp that I didn't howl my eyes out. I waited till I got to the privacy of my car to do that!
Actually this time two years ago, my leg was giving me gyp too thanks to the spine being thrown out from carrying the oxygen unit. Maybe it should come with a government health warning!? 'Warning...It stops you from dying from lack of oxygen, but you will look like Quasimodo after prolonged use!'
Whatever it is, it hurts and gives me quite a nauseous headache.
Perhaps I should fish out my yoga and Pilate's DVDs out of retirement for a good stretching session and learn how to use the DVD function on this TV, after all I've had this new TV long enough.

It really is icy out there today and when driving along to hospital this afternoon, I noticed that there was still frost on the grass where the sunshine hadn't reached it.
I've taken to wearing a thin jumper and a cardigan around the bungalow as I'm terrified of having huge bills to pay this year.
Every time you put the news on, there is doom and gloom on the TV, the cost of this rising or that rising and jobs or benefits cut. I know I am very lucky as I have my lovely little bungalow, nice clothes and good food on the table, even when I'm on a baked beans on toast saving money drive, it's still hot food. So I don't think of myself as hard done by, but watching TV, you realise that the divide between the rich and poor is getting wider all the time.
It was something that we were talking about over coffee at the Christmas craft fair on Sunday, that some of the prices of things on sale were so exorbitant and people were still buying them. There was a lovely fur hat that I thought Ann could have, until I realised that it wasn't a typing error and really was £140 not £14.
Even if I was suddenly wealthy, I don't think I could ever pay the prices for things that you see in the glossy magazines. I just keep thinking how the money would be better spent on worthy causes and the inner glow that you would get giving money towards feeding and clothing a homeless guy or even working out in the soup kitchens yourself, then buying yet another handbag that would get relegated to the back of the wardrobe along with the others within three month or so.
When you read articles in 'Hello' or 'OK' magazine etc and see these clothes horse women standing in front of their wardrobes with racks and racks of shoes in a room just for their shoes, you have to ask yourself how can they think that is acceptable?
Thank goodness for the Duchess of Cambridge, our future queen who is happy to wear dresses from the high street shops to various events. Now that is a role model to be proud of... Well done Kate!
Don't get me wrong, I love pretty clothes as much as the next person, but those days of buying for the sake of it went a long time ago. If I buy a new dress, then I sell an old one or it goes down to the charity shop in the village and I never buy unless in a sale and it has to be a real bargain around the £25 mark. And I think I look presentable.
Lord I am a moanie old git aren't I?!
Sorry.

Lots of love Debbie x

I'm Santa's best friend...twice

Up and dressed early today, as day two dawns of waiting for the heating engineer.
I may have got dressed early, but no way was I leaving my bed premature, as I laid on top of it fully dressed and had another 40 winks or more!
It's freezing out there, so why would I want to be parted from my best friend the bed I ask you? As I laid there, the heating was making the loud groaning noises again which is why I called them yesterday. The groans are a mixture between Marley's ghost and a cow in labour. I knew when I rang to make an appointment, that the receptionist thought it was just my radiators that needed bleeding, although I knew it wasn't the case, I did know that no way would anyone come out yesterday,so I was wasting my time staying in all day.
I so hate being right all the time.
I was right on both accounts, no engineer yesterday and no, it wasn't the radiators. It was however the same pipe that the spider had nested in and that the engineer had covered up a hole in the pipe with tape and this was making the fan work overtime.
With cows and spiders, my bungalow is a regular animal farm!
I do wonder, whether all these discoveries will make my bills lower? It is warmer in here...just, but every bit of savings counts. I do have a draught coming from somewhere, but I can't find where from yet.

It is really cold out there today.
Still this time last year it was snowing really badly, so I'm thankful for small mercy's. It is easier to swap coats and wear thick boots, then to balance on the ice and snow with my rocket pack come oxygen unit strapped to my back like last year. If walking and balancing isn't nerve racking enough, then driving in the snow absolutely terrifies me!
I had a good day though doing little bits here and there.
After the engineer left, I visited my eldest son with soft food as he had broken a tooth and had some treatment done on it.
Came home and made a rather nice winter warmer stew for myself for lunch before visiting my friends, who are going off to France soon to spend Christmas with their family.
My friend was getting ready to go out with one of the town's major charities on 'Santa Patrol', he was going to be Santa!
Strangely enough my friend Derek is going to be Santa for our village 'Santa Patrol' too. Blimey, did I ever dream when growing up that I would be best friends with not one but two Santa's? How cool is that!
Driving home from their house, I noticed just how many Christmas trees were going up in people's windows and just how many people now decorate the outside of their houses too. Although alas some aren't as tasteful as how my neighbours decorated our hedges with the lovely plain blue sparkly lights, but some are like Mississippi show boats in full sail or even a fair ground attraction in their front gardens.
As Julie would say 'You are a snob!'
Still, they are pretty and they make you smile and that is good enough for me!
Ho ho ho!

Lots of love Debbie x

Slimming World...I salute you

Whose the mumma? Who... is...the... mumma? Meeeeeeeeeeeeeee!
I have been weighed in tonight at tubby club and I now register the desired weight of 10st 2lb given to me by the doctors at Papworth!
Who would have thought when I sat in their office on the 25th July and they told me to get fit and to lose a stone and a half in weight, that I would have achieved either?
In fact I have lost more than a stone and a half, as I have lost a total of 1st 9lb 7ozs, as I had managed to gain a couple of lb more while deciding which leg to cut off in a bid to lose the weight.

When I sat in their office, listening to all their words of advice on what I should and shouldn't do, although I was nodding and inanely smiling while they talked about losing weight, I was secretly thinking 'they must be off their bloody heads, as there is no way, I can lose that much!'
But here we are less than five months down the line and I have done it and I'm a lot fitter too.
I can't believe it.
Jean said tonight that she was so proud of me and she too had her doubts that I could lose it, knowing how much I loved my chocolate bars and blueberry muffins with a daily cappuccino.
I remember us discussing this tall order later on, and mumbling that maybe if I could by some chance lose a stone, then that would satisfy them.
But Jean said that I had shown how strong my actual will power can be when there is something I desperately want.
I honestly thought that side of me had disappeared a million years ago.
My boys and Reni are chuffed to bits too. When Oliver said that I WOULD do it, I thought he had got me muddled up with the mum I used to be when he was about five years old, as he had that unbending belief that I could do anything then too.

I thought that the wheelbarrow full of drugs that I take each day and have done for the past six years, had taken it's toll on my body and I wasn't going to see the old me ever again.
But thankfully I was wrong.
Slimming World, I salute you.
Ok I'm not as firm as I used to be, although my tummy has always needed a bit of extra help. I did have very fab legs only a couple of years ago. Very firm and absolutely no cellulite on them at all, but no exercise and lots of 'mean old' drugs to help my breathing, and my legs aren't no where near how they were. But I am two years older and I have had hardly any real exercise to build up my muscle and keep the old pins firm since this disease took hold.
The steroids must have retained a lot of water on me, as I would wee for England in the first month or so on the Slimming World diet and now my tummy is so much flatter.

I wouldn't say that the first week or so was easy, far from it. I was so hungry that I would have licked the food photos off their diet cookery books, but once I got the hang of it, I actually enjoyed cooking again and I can't really say that I have been that hungry. I still have cappuccinos when I go out and share a cake.
I am hoping to go swimming again soon, but I have to be honest, the thought of stepping outside into this cold weather after a swim, has me diving for my duvet!
I am hoping that I get this transplant soon, so by the time autumn gets here, then I might be allowed in the water again, as swimming is off limits for a while.
And if I swim in the sea, I'll have to keep my mouth shut too, as strictly no shell fish or sushi.

I now have another challenge and that's keeping it off, but I'm not that worried. Extra pudding or a size 12 dress?
What do you think!?

Lots of love Debbie x

Heave ho my hearties

A bit of a roller coaster ride today.
The first part of the day was lovely, a leisurely morning getting ready for my first Christmas lunch of the season at the Silver End bowls club.
I don't play bowls, but Greta and Ken do, so we get to go as their guests when these fund raising events are being held.
It was a really rather jolly lunch until it was time to go home and that's when my breathing started to get a bit laboured.

This wasn't caused by an attack or anything, but it's more about my diaphragm pushing up my lungs and making life a bit painful until in my case, I can empty the content of my lungs and settle things again.
This is why I have weekly physio sessions to give them a really good drain, it used to be twice a week , but the girls are terribly overworked now and I have now learnt how to control and release the phlegm myself.
But I didn't think that the bowls club were ready for me to do that little procedure in the ladies toilets quite yet. Plus I would hate for the members to think that I had lost my weight by being bulimic on top of everything else, so it was a quick exit home for me.

It wasn't that I had over loaded my plate, as a) it's weigh in time again tomorrow at tubby club and I still have one last lb to lose before I reach Papworth's desired weight for me. This weight is the doctor's recommended weight to help me recover faster after the transplant.
And b) more importantly, my rehab classes talks have taught me the do's and don'ts of handling this disease and why certain problems arise.
They reckon small plates of food, or as they would say little and often.
Some foods also can cause phlegm to increase in your lungs or to blow your diaphragm up like in IBS or in my case both. Too much milk, cheese, bread or too richer food are all baddies and of course Christmas lunches do tend to be a tad on the rich side.
Plus in some breathing related cases, people with rapid breathing tend to swallow a lot of air causing tummy problems too.
So add together a bloated diaphragm that's crushing your lungs upwards, which in turn stops the lungs from taking in and out as much oxygen as they should...not forgetting these lungs aren't working properly in the first place anyway...then fill those lungs up with thick sticky liquid and you don't feel that wonderful. No afternoon Salsa classes for me.
So I got home as quickly as I could and then had to empty my lungs in the comfort of my bathroom and without bringing up my dinner too.

After a little nap, it was business as usual, but just a lot slower than normal as completing a few rounds of postural drainage does tend to take it out of you in more ways than one!
I used to think it was the cocktail of drugs that I take that made my stomach blow up like it did, but since being on this diet to where I have changed my eating habits, I am amazed just how much my tummy has gone down and how the IBS symptoms have eased off.
Meals out were always a nightmare, as I always ended up with a mad dash to the toilet, but my meals hardly ever end up like that now thankfully.
I do get comments that I should be wearing a halo when not filling my plate to overflowing, but being greedy has never has appealed to me anyway and why should I want to voluntarily put myself through that pain?
I may be daft, but I'm not stupid!

Lots of love Debbie x

Santa's little helper

Well nothing has been returned to me in the night...the bosom fairy hasn't been to visit me as my boobs are still pretty deflated.
Though the North wind fairy has visited instead as I have turned into my mother! She has a neat habit of farting when she walking and alas today that was true of me. This is where I wish I had a dog to blame it on.
Not sure what has brought that on, but obviously something that I ate yesterday...my homemade curry maybe or the smoked goose salad for lunch today?

This morning I went to the Cressing Temple Christmas fair with Greta's husband, with the soul aim to help Ken get her a lovely personal Christmas present.
I steered him away from the purple 5" sequined heels and the black stockings with the bows printed on them, as I have a sneaky feeling that if Greta opened them on Christmas morning, she probably wouldn't be speaking to me by Boxing day morning! I just hope he doesn't sneak back tomorrow unsupervised and buys them.
How the hell anyone manages to walk in them is beyond me, as I would need trainer wheels attached.
When we sat chatting about them over a cup of coffee in their tea room, he explained how high heels give women's legs a definite shape...I explained if I wore them then my leg shape would be that of a wish bone, as I would be a bandy as hell balancing on those bad boys. In fact, I would need a pencil skirt on to keep my legs together!
Ladylike I am not.
He went home empty handed and a glint in his eye. So Greta if they turn up under your tree, I am innocent.

The rest of the day really dragged. I did various jobs around the bungalow, played scrabble with mother and it was still only 5pm.
So I went home and had a nap, a bite to eat and then off to the cinema.
I still find a visit to the cinema far from relaxing at the moment, but I was able to sit nearer the exit this time and after I texted the boys to tell them where I was if I missed the call, I found a great use for my now empty bra cups...a mobile phone cradle!
As I have said many times before, I like and very much need a structured plan as I can't just wing things now and a visit to the cinema needs just the same planning. I need to know that I can get to the phone, check who it is and answer it before it rings off.
No doubt the first time it rings in the cinema, it will be someone trying to sell me an upgrade...heavens help that person.
If I hear anyone say 'Just relax' or 'you have to get on with your life as normal' once more...trust me... I'll probably spit in their eye!
Still I'm sleeping better, so baby steps hey.

Lots of love Debbie x

My boobs have gone missing

I think I have sussed out why I hate Thursdays so much just lately. It's because for the last month or so, I have been full of expectation each Thursday re; waiting for the call from Papworth and only to have it knocked out of me come Friday when I still hadn't gone 'live'.
Of course that little conundrum has now passed...yay...but it appears that I am stuck in a rut.
Tra laa, it's that simple, so now I have got to learn to embrace Thursdays again...easy peasy.

Friday could take over the title of Black Thursdays, as this morning I realised someone had stolen my boobs! It is true, I no longer fill up the cups of my bras and in fact, I can see my toes through the empty cups.
My empty cups could be hammocks for family pets i.e. hamsters, gerbils or maybe even little kittens.
Damn it, the only good thing about being over weight, was that I had grown into a 40DD bra size...Oooo I had boobs that I could only dreamt of before...and now I have gone back down to a 38C or D at a push, but definitely floppy.
So unfair. They look like Spaniels dogs ears again...darn it.
Surely all these weights that I've been lifting at rehab, should have helped them to stay a little bit perter? All the years that I walked around bra less in my 20's or had a greedy baby strapped to one of them, hasn't helped either...massive sulk coming on.
Why can't I have lost weight, but kept my boobs?
Or maybe, when they whip out my lungs, they could tuck them into my saggy maggies and give me an impromptu boob job??
It's worth asking about surely, after all the lungs are only going to be put out in the garbage bin, so waste not want not hey?
Ah well a girl can dream.

Lots of love Debbie x

Thursdays..yuk

I'm beginning to loathe Thursdays, but I don't know what Thursdays have done to me to deserve this ill feeling against them?
When at work, Thursdays heralded the start of the weekend for me with all that Thursdays being the new Friday, a bit like navy being the new black, you know that sort of 'Cosmopolitan' magazine claptrap.
But now, I hate getting out of bed on a Thursday morning and I seem to stomp around in a bad mood all day.
Must run in the family, as my mother was in much the same foul mood at lunchtime too. She wanted to go out again yesterday for a drive or something, but my sister came over late morning and scuppered the plans, so I promised her lunch today.

Once we were at the restaurant that she rather liked last time, mother announced that she should have stayed at home as she didn't like this restaurant and she wasn't hungry etc.
Okey dokey...this wasn't going to be a fun lunchtime.
Neither of our moods got any better, as after 30mins I asked where our meals were and then again after 50mins.
As I am trying to always have a good day with mother, I resisted saying what was on the tip of my tongue 'that she wanted to come out' and tried to keep smiling, but after the orange drink was too cold, the restaurant was too noisy and then the AWOL meals, my smile was beginning to droop a bit.
Actually the food was fine and we were offered desserts on the house as a way of an apology from the management, which I duly asked mother if she had room for apple pie and custard? Which of course she had, until about 10mins later after my coffee had come, when she announced she was full, so why were we still sitting here...ok count to a 100 Debbie.
Then after another 30mins, it seemed her free dessert had gone AWOL too and I'm afraid that was the last straw.
I got our coats on and went to leave just as the waitress turned up with her dessert...
I'm afraid there were no tips left today, only a spoon stuck very unceremoniously in the centre of the apple pie!
I guess old people get dementia for a very good reason and that is I'm ashamed to stay that middle aged daughters have very short fuses at times.
So at least when I left my mother with a cup of tea and her TV on, she was all smiles again and saying that we must do it again soon.
Do I feel a cad? Yep I do.

I really must get over these Thursday sulks, as I am a lucky lady all in all. I hopefully will have another shot at getting a normal life again.
I have a lovely little bungalow which I adore and love buying little treats for it. Yesterday it was new iron as I am a real saddo and I love ironing, even though I nearly screwed it up by leaving the plastic film covering the hot plate and trying to iron with it on...but it all came off, so no harm done.
I also found some old burnished gold letters in my initials D.E.B for my wall and then managed to get another at the same shop 30mins later after I dropped the E and broke it in half. Ever since watching 'Rhona' when I was newly married and seeing her initials on her wall in her apartment in New York or wherever it was shot, I've always wanted to do the same. Now I have Rock & Roll and D.E.B...how lucky am I!?
I have lots of lovely friends that I see, text and talk to daily. Derek is recovering well and is safely at home where he belongs.
I have two gorgeous sons, a sweet heart other and an odd selection of family which some a definitely a lot saner than others, but I wouldn't be with out them .
So why am I always fed up like this on a Thursday?
Any thoughts please?

Lots of love Debbie x

Velour v flannelet

Ooo one tired bunny today when I woke up, so it was definitely pj and lots of strong green tea sort of morning .
I am still weighing up the pros and cons of velour track suits versus flannelet pj bottoms and my old university hoodie.
I know that I look less like a 'crack head' in my velour, as short bleached blonde hair, dark bags under eyes and a hacking cough, may give out the wrong impression, especially while I'm walking around with my shoulders tensed up around my ears in my hoodie and syringes on my bed.
But bleached blonde hair and a woman of a certain age dressed in velour, sounds very Essex too!
Lordy no wonder I live alone, as I can't win either way really!

I did have a leisurely morning to recharge my energy cells, that weren't charged up last night because of lack of sleep again.
I realise it's only a matter of time of when my sleep pattern returns and all will be harmony in my bed again, but until then I will continue shuffling around in the morning until I am ready to rock and roll with the rest of the world.
Of course if I do get the transplant, then I'll be unconscious for at least three days while my body is healing and the doctors keep you out for the count for that long, so I'll definitely catch up then...mental note to warn them that I like my sleep and they may need a rocket launcher to wake me up again!
I think one of the things that is keeping me awake, is that I might not get chance to say goodbye to mother before zooming off to have it all done and that worries me.
On the other hand, I'm trying to always leave her bungalow in a good mood, to leave her smiling and of course to tell her I love her about ten times as I walk through her front door, so she is getting the benefit of me worrying.

Ooo... I've just had my heart jump through my chest and into my mouth as I type!
Earlier I asked Derek's son if he could set the Papworth numbers on my mobile phone to a different ring tone to everyone else's and my phone just went off playing the new ring tone...OMIGOD.
After leaping across the table for the phone and nearly knocking it onto the floor, I then juggled it in the air for a couple of seconds like a hot potato, while I fought to get control of it before checking the number.
But he must have set everyone else's numbers on the new ring tone and Papworth on the old, as it was my youngest son wanting to know which dentist I had booked him into for tomorrow!
I may have weed myself a little bit there I'm afraid folks...
Nerves of steel...nah...nerves of marsh mellow more like!

Lots of love Debbie x

Dinner and phlegm dear?

The good news is that the angiogram consultant couldn't exactly find anything wrong with Derek's heart or should I say what was causing the problems, so it appears that he might not have a heart attack as his heart and surrounding bits aren't damaged in that way after all.
All very confusing.
So now they need to find out why the blood tests registered that he had a mild one and to find out why his pulse rate is so low, so not out of the woods yet, but definitely a bit of sunshine filtering in.
Fingers crossed that whatever it is, that it's easily put right and he can carry on skippering on as many ships as he wishes and he go on to help out with the village pantomime again.
A grounded Derek does not equal a happy bunny.

My trainee physio's highlight of the day, was sadly pummelling me. He was thrilled that I was bringing up so much phlegm off my lungs and the more excited he got, the better rhythm he got when pummelling, which in turn helped me bring up the dregs out of the darkest recesses of my lungs...yeah I wish.
I do hope he didn't go home and tell his girlfriend over dinner all about what he had achieved today, comparing the thickness, the colour and the quantity that he helped out of my lungs with other patients, otherwise I can see that as one short romance!
'Oh darling, you could have hang up wallpaper with the contents of her lungs!', not quite a relaxing environment for a young couple.
It always makes my breathing so much easier after I've got over the sheer effort of it all, but blimey it gives you a headache too.
Somehow I can't get into a such a rapturous state over bringing up the contents of my lungs, but it is nice to see someone getting so much out of a training session and enjoying their job as much as him.
I will however get into a state of ecstasy when I can bend over, stretch up or even laugh out loud with out a mouthful of the green stuff coming up.
However scared I am a bedtime, I have to remember what I'm aiming for and then the dark won't so scary.

My downer of the day, was that my iron died on me.
I love ironing and had got everything ready, complete with a good programme saved ready to watch while I ironed away and zilch, the heat faded away and the iron wouldn't work again. So more money to spend out.
Bummer...at this rate, I'm going to have to go back to work before my transplant! I can't actually remember how long I've had the iron, but I think it's probably around the six year mark now, so I guess it's come to the end of it's life span. A bit like me, got a shelf life date on it!

Lots of love Debbie x

Ooo sleep deprivation is making me cuckoo

I have started to rock backwards and fore wards or either sideways when standing, so I think I officially have sleep deprivation, either that or I'm getting broody!
A whole nights sleep is definitely evading me at the moment and leaving me feeling really rough when morning comes.
A bit like I have been out for a night on the town with the Rolling Stones, Ozzy Osbourne and Alice Cooper in their hay day and who ever is the bad boys of rock now. Although I don't honestly think that nowadays they make bad boys rock stars like the sort from my generation...oh blimey, I have stepped into that trap of quoting 'in my day!'

I can handle this uncertainty of 'will they won't they' calls, so much easier in the daytime when there are people about, but come the moment when I switch of the lights to go to bed, the old wobbles start again.
I fell asleep today late afternoon in the armchair and woke up in the dark, but with a real start as there were blue lights outside my bungalow. For one horrible moment, I thought the ambulance had come to collect me without pre warning me and started hyperventilating...again!
In actual fact it was next door's pretty blue sparkly Christmas lights which they very kindly put on my hedge too. I've always wanted pretty outside Christmas lights and now my kind young neighbours have granted me a wish come true.

Rehab was fairly hard work this afternoon too, as I was lacking badly in energy.
Not only haven't I slept properly, I also haven't really eaten properly either since last Thursday and I now feel that I am expected to do four minutes... I know that doesn't sound a lot, but believe me if you are short of breath, it's a life time... on each exercise for the old lady's sake who sits near me. She is so proud of me and cheers me on, while some of the other older men just glare at me. I'm sure they think I'm showing off, but believe me, I'd love an excuse not to work my tush off today!
I sometimes stay on for the talks that follow even though I have heard them about five times each, but the physios like me to help by inputting and getting the others rehabers to join in. Sometimes it is hard work for them as no one says anything ad they are just met by a stony silence.
But tonight I knew I had to buy a birthday card for my niece and then take it round to my mothers for her to fill in ready for tomorrow. That is a task on it's own as she has lost all confidence when it comes to filling in cards and asks me over and over who is it for and how do you spell the name. Then off home to do my drugs before then go off to 'tubby club' to be officially weighed in.

I didn't think that I would be very successful tonight, but how wrong was I? I lost another 1.5lb which means just 1lb more and then I'm at target weight.
Ann reached her target today and was really chuffed, relieved and bouncy like a puppy dog!
It's not been that hard actually, as she has lost 1st 6lb in 17 weeks and cheats like you would not believe and hopefully next week, I would have lost 1st 9.5lb in 18 weeks. I am really chuffed with that, especially as you get sparkly stickers for each milestone. Being a useless pupil at school and in the end, only saw school as an extension of my social life, I really never got many gold stars. Perhaps if I had got stars in the early days, I would have tried harder, as I throw my heart and soul into learning now and actually enjoy it.
So perhaps tonight I will drift away into a contented sleep, as I've eaten and had a hot bath... so fingers crossed!

Lots of love Debbie x

Nerves are a little frayed around the edges already

I am so tired.
I suspect it is going to take me a while to get into the swing of this 'will they call, won't they call?' to the point where I can just go to bed and not actually worry about getting the donor call in the middle of the night.
My bed which was my place of refuge, is a bit unsettling now at bed time. Last night was the first time in a long while, where I wished that I still had a husband or a partner to cuddle up to and know that I wouldn't be alone when that phone rang.
I know that my youngest son would be here in a flash and my eldest, as quick as he physical could and I know my friend would come zooming around straight away, but that fear of being on my own while waiting for reinforcements is all a bit daunting. And the worst thing is...I could still be feeling like this in a years time!
I also had a dream last night, that I had got the call and I couldn't contact anyone and they had sent a fire engine instead of an ambulance. For a horrible moment, I couldn't work out whether I was dreaming or not. Still it would have been nice to wake up and find a man in uniform in my bedroom!

It's tubby club weigh in tomorrow and I don't think I've lost any weight this week, mainly as I haven't really eaten properly to start with and when I do it is followed by waves of nausea and uncomfortable panic attacks, where I come over hot and flustered.
What I'd give for just one night on the brandy. It's not as if I'd drink more than two anyway, but I'd just savour them and make them last.

I went to see Derek again today and I realised that my heart is actually stronger than his...how weird is that. He actually looks so well sitting there in his casual gear, while wired up to the hospital monitor and there's me opposite him looking far from rosy. Talk about a creaking door going on and on.
I did feel so sorry for him today, as it has hit home that all the things that he really enjoys, like skippering the tall ships and organising all the scenery for the village pantomime etc, will all have to take a back seat or totally change.
It's hardly likely that he will be up to constructing the scenery for this year's production now, although if his boys were able to take over, than at least he could still take part by advising them. But in my view, if it's someone else entirely, than he would be best to stand down and let them get on with it...too many cooks and all that.
As for the skippering, well once you've had a heart attack, Derek says that sadly you can't be in charge of a ship anymore. I don't actually know, but that does sound feasible. You can still sail, but not be in charge of others apparently.
He was very argumentative today even though he was still smiling at the time and when we were trying to help by suggesting things, he wasn't having any of it. He always had an argument ready for why he wouldn't be able to do this or that.
I know oh so well on how he feels. Like me, he likes to be in control and that is one hard mother to relinquish. He will experience, despair, anger, hope and utter bloody confusion in all sorts of random patterns.
At the moment he doesn't know what they have decided to do with him, as his angiogram isn't scheduled until Tuesday. It's the unknown which I think is the worst.
But whatever they decide, I know he will get through it and come out through the other side as strong as ever, it will just take time to sink in.

I'm off to bed now for hopefully a good night's sleep.

Lots of love Debbie x

Lessons had been learned

hellooooo...I'm still here, not gone to any hospitals.
I was too tired after my long planned day out to the 'Thursford Christmas Extravaganza' in Fakenham, Norfolk to update my blog last night.
In fact I was actually so worn out, that I didn't know whether to cry or what when I got home.
Lesson one that I have learnt and this one is for anyone waiting to go on the transplant list: Fridays are when the National register is updated and if you don't want your nerves jangling like charm bracelet on your first day of being 'active,' avoid Fridays like the plague for booking an outing.

Firstly I didn't sleep well at all on Thursday night. My mind was like a coiled spring and didn't not want to relax even after a couple cups of herbal tea. All I could think of, was that old saying, 'be careful of what you wish for.' Big late now to start hearing voices.
Secondly: You nearly always have to get up early on a big day out, so straight away you are at a disadvantage, especially if like me, who likes her sleep and then hasn't slept well.
Thirdly; well I have no idea, as all the problems started blending into each after that! Ridiculous really, as what are the chances of getting a donor on your first day, especially knowing my track record of things never quite going to plan?

We stopped off at Swaffham, which is about an hour and a half from mine for a spot of morning coffee and as we now had now been given our tickets, it was a chance to text my sons where exactly I would be...postcode, phone number, row and seat numbers etc.
We set off again for the last hour or so of our journey and my hospital mobile phone went off with an unknown number flashing up...oh shite!
It was a hospital, but not Papworth. It was the girls from respiratory team, asking if I fancied coming along for the new doctors to meet me as a trial patient and earn a bit of extra cash into the bargain. After checking whether I would be hurt in anyway and being assured no, then I agreed.
It was then that I realised that had been Papworth , I wouldn't have had a 'Scooby do' where I was, as I hadn't bothered to look at road signs as we were being driven along and it hadn't even crossed my mind that they might ring while I'm in transit. I had only thought that they might ring while I was in the theatre, not on the coach. I hadn't made a contingency plan for that!
Would I have had to got off the coach and wait by the road side for a passing ambulance or what?! Oh blimey, I really hadn't thought this bit through.
At that point I did start panicking a bit, well quite a lot and bombarded my friend Greta with lots of what ifs. Though I controlled myself and didn't run up and down the aisle of the coach shouting OMIGOD waving my arms about like a windmill...I did think about it though... and I thought at one point that Greta was going to have to slap me around the face as in the old black and white movies to calm me down!
Ooo definitely a case of the vapours!

Once I had got myself calmed down again and stopped my gibbering, we carried on to Fakenham and went on to watch the show, with only the odd facial twitch to show I was under stress.
It was very pretty show once again, but when your mind is elsewhere, you aren't really going to give it your best attention span and enter into the spirit of Christmas are you?
I just wanted to go home, lock myself away and come out when the whole ordeal was over. Alas that wasn't going to happen and I found myself turning into 'pushy old lady' mode when I went off to the loo. There I was nice and patient, waiting for the person to come out of the disabled loo, when an old lady came up and started muscling in towards the door.
Strange, as I found our eyes locking and battle had commenced. My normal hapless expression had been swapped for a steely eyed glare...needless to say, I won, but only because the previous occupant of the toilet blocked the old girls way on their way out...ha sucka!
Blimey if ever I live to see old bones, I'm going to be one ruthless old lady from what I'm learning now!

So a fairly easy day today. I'm not planning on going far and I'm definitely taking it easier today.
When reading the instruction pack from Papworth for the 100th time, I had to chuckle where it said that 'you may not feel in control of your life.'
Blimey, I stand no chance as my life has always run riot!

Lots of love Debbie x

Punch the air time!

OMIGOD! Omigod!
From midnight tonight, I will be on the active list!
I have to thank my middle sister Helen for this bit of news, as we were chatting on the telephone this morning and she asked me if there was any news yet about me going live. I explained that Thursdays were spent wishing and hoping and Fridays were always an anti climax that once again... zilch.
I also told her in another sentence, that I was going off to Norfolk tomorrow to watch the annual Christmas Spectacular, which was when she pointed out, that wasn't I suppose to tell them if I was an hour or more away from home?
Well yes, I know that, but I wasn't active yet.
'Ah yes' she said 'but if you go on the active list tomorrow and however unlikely, if something comes up the same day, they'll need to know double quick that you are away from home and if you are out of signal, they won't know where to find you on a land line.' Plus this might prompt some answers?
Gosh my big sister is smart.
So after a lot of nail chewing and deep breathing, because I didn't want to call them and be thought a nuisance...I rang them to explain my predicament.
Of course they were as lovely as ever and assured me that I wasn't being a pain and asked me to just hang on a sec. Then she came back with the words that I have been waiting to hear...
'I've just been told by the coordinator that at midnight tonight, you will be on the active list.'

Needless to say, I said my thank yous to her about a million times, hung up and then cried silent tears of relief.
I then went and looked at the pile of Christmas presents waiting to be wrapped in the corner of my bedroom and panicked...a lot...and then called my boys...who also went OMIGOD a lot too!

Still life goes on and I went on to pick up Julie to visit Derek in Broomfield hospital, her husband and my 'man who does', who for the foreseeable future...doesn't, but looks remarkable perky for someone who has had a heart attack.
I brought him an early birthday present... a pair of Super Hero pj bottoms... as he is my hero when he dashes round to mend whatever I have managed to break this time.
He is awaiting an angiogram, but they think that he has a bit of tubing that might be ridged with a bit of fat and might need a stent put in. But they will have to wait until after the angiogram at Baz Vegas hospital or Basildon to people from the surrounding areas and over 50, before they really know what's what.
But I am happy to report he was still nagging me and looked good.

Tonight was my course on Boudica's Revolt and we had to have a little test, which surprisingly I did well in with my hand going up and down in a 'Ooo I know, pick me, pick me' movement.
So I'm amazed that I remembered as much as I did, as there were a couple of dodgy moments in the last few weeks where I had nearly drifted off, as it was a tad boring at times.
I even got a few 'good answers', from him...but alas no stars.

So now, I'm going to try and pack away some presents ready...just in case!

Lots of love Debbie x

Get well Derek

Blimey I had to check whether today was Wednesday or Thursday when I woke up as my normal black Thursdays seems to have morphed into Wednesday.
Julie rang me just as I was rushing to the toilet first thing, so I decided to call her straight back after that, but the lure of my warm bed beckoned me back into for another ten minutes shut eye.
Julie then rang again before my eyelids had closed and I thought that was rather persistent even for her, but thought she had some exciting gossip to tell me.
She had something to tell me, but unfortunately it was more alarming than exciting...poor Derek had been rushed into hospital with a suspected heart attack at 1am!
Bless her she had been up at Broomfield all night and wanted to tell me before trying to have a nap of sorts before then cracking on to sort things out for him.
Thankfully he is ok and it wasn't confirmed until after the blood test results had come back late this afternoon that he had in fact had a mild heart attack, but they were quite concerned that his pulse rate is still so low. We will go and see him tomorrow for me to bounce on his bed and annoy him, but I did manage to speak to him on the phone today and thankfully he seemed very relaxed about it all. Although how relaxed he will be if they tell him to slow down, well that will be a different kettle of fish totally!
I think we are going to have to start up our own club...'Control Freaks Anonymous!'

After I had a chat with Julie, I went off to have my morning soak in the bath. I filled it up to my usual levels, jumped in and nearly jumped straight out again, as it wasn't the normal lovely hot bath water that usually has me lowering myself in bit by bit going 'Ooo O hot hot.'
I quickly washed my hair in the bath and tried to run a bit more hot in to top it up, but the water wasn't haven't any of it all at, as it spluttered and rumbled in the pipes.
It was at this point that I remembered that earlier this year, my boiler had cut out and I had the same result...no hot water and no heating all day. So once I had dried myself, checked that there wasn't any heating either, I padded out to the boiler in the kitchen and pressed the button. The button that the kind (I say this with tongue in cheek, as he was far from kind) gas repair man had previously coloured in for me, so I wouldn't call him out again on a fool's errand as he so eloquently told me last time.
As I stood there with just a towel wrapped around me, I did wonder that maybe before a spark leaps out and ignites my oxygen, whilst blowing up my bungalow and blowing my towel off, that maybe I should have put some clothes on first so I didn't scare the firemen!? Even though I was voted Miss Slinky at the Tubby Club two weeks ago, I don't really want to show off my body that way if I have a choice.
Luckily for me a nice kind man came today and he was there for ages taking bits off the boiler, phoning people, taking more bits off the boiler, then doing a bit more phoning, while all the time I'm adding layers of clothes...towel had been exchanged for warm jumpers you'll be pleased to hear.
There was a bit of frantic telephoning outside the bungalow on his mobile and even more frantic TV channel hopping from me when he walked back into the front room. I was watching last night's recorded episode of 'True Blood' and as he walked in there was a vampire and a mere mortal jumping up and down on a sofa naked together...groaning a lot!
Great...he now thinks I am a little old lady who watches porn!
Thankfully he was more worried about his frantic calling, which luckily for him, the voice on the other end told him to blow down some pipe and low and behold problem solved...a big old spider and a big old spider nest flew out!
Yuk yukkety yuk! How gross is that????
I now have heating, hot water and a very large dead spider in my dustbin.
Thank you young man.

Lots of love Debbie x

Not going up... or down either

When my friend Sam left our old work place at the Uni, I vowed that I wouldn't bother going back in there, but just see my friends who were still there out of work instead.
There was always a feeling of unease on the floor just before we started leaving, that you could no longer stand and have a quick catch up in case you got a black mark by the bosses, which was such a shame as old colleagues and ex students were always made welcome before.
This change is ironic really as we used to come under the pastoral banner, so call me old fashioned, but isn't caring about people that you had worked with for eleven years, kind of what is was all about?
Anyway, today I had to get a parcel to one of my friends there for tomorrow and I decided to bite the bullet and go into work and see her.
Big mistake, actually huge mistake!
Not because they quiet because they were worried about getting told off, as their whole department are leaving in one way or another soon, so they are all a bit indifferent about it all now, but because once again the lift wasn't working.
Every bloody time I go in there, which actually only amounts to about twice since my farewell do, the lift isn't working and believe it all not, the department on the second floor was aimed at disabled people.
Durr hello.
I walked up two floors with one of my friends pulling me up the last floor, because at that point I thought my head and lungs were going to blow up simultaneously. By the time I got my breath back enough to manage to walk through the door and speak, I was livid, I don't think I have ever said the word 'bleeding' as many times in one sentence as I did then!
I was furious. I wanted to say words a lot stronger, but I didn't want to damage the tender ears of any students who were up there.
One person said that she had checked to make sure there wasn't anyone coming in for an appointment using a wheelchair and they were supposed to fix the lift out of hours, but there are other walking disabilities that need help too and they are a drop in centre for all sorts of urgent needs and advice...tut tut... I feel a black mark against the building is in order.

As I said yesterday, there is always something that you have to battle against and of course today it was the lifts.
I'm sure my life was always a series of little challenges in the days pre-oxygen and I'm sure that I coped with them probably with as much shouting, though Ruth does think I have mellowed a considerable amount since she has known me and I actually do think she is correct, as what would normally have me frothing at the mouth, now seems to just get the word 'bleeding' or 'bally' as a show of my disapproval.
Writing this blog helps my stress levels a lot, as when I re read it, I think to myself 'I got upset about that, I am such an idiot?!'
I dare say it works a bit like the Mayan worry dolls that Reni and Oliver brought me back from Mexico. You tell them your worries every night and it helps you clear your mind so you get a better night's sleep. Mind you at the end of the first month, you could see the box quivering as I came near it and I'd find little worry dolls under the bed or behind the bedside cabinet, where they had jumped!
I do hope that you don't run out your room quivering when I have another rant?!
Sorry x I'm a nice person really, I promise.

Lots of love Debbie x

Blimey I must stop thinking

I am pleased to announce that I am officially a fully fledged Essex girl. Why? Because at the ripe old age of 55, I have brought my first ever velour tracksuit.
I wish to point out that I apologise to anyone that love to wear them normally, but they really aren't me, I'm more a fatigues or tapered trousers sort of girl. I have brought mine for medicinal reasons, as I thought it would be easy to wear in Papworth hospital post transplant.
I think I should have chosen a more uplifting colour rather than mink though, as I look washed out in it and that is me with a tan, let alone when I'm looking like death after the op.
I hasten to add that I will not be wearing trainers with it!
Actually I do have a pair of converse trainers, but they do happen to be covered in bright blue sparkly sequins. In truth I brought them for when I went on a cruise to Norway just in case I fell over board and my shoes would show up in the water, well that and the bright yellow mac that I also brought for the same reason.
Luckily for me, I didn't have the opportunity to try them out, but the girls never lost me on board the ship!

I'm doing lots of thinking at the moment and I know this sounds strange considering that I've just brought a tracksuit, but I realised properly for the first time, that I could be in trouble with my gas heating bill this winter.
Everyday you hear the horror stories on the news about Age Concern worrying about the old folk and young families worrying about paying their huge gas heating bills as the price of gas is escalating and as my back up money is already dwindling away, I've realised that I could be faced with a large bill and that's quite a sobering thought.
Now I've no longer got my working wage coming in, I'm having to manage on about three hundred pound less per month. I know I have some benefits coming in and my work pension, but everything seems to be going up weekly.
I have started sitting in my living room with a blanket wrapped around my legs and an extra jumper on. Yes I do have my heating on, but no longer constantly and not until I've got up. By this time of night, it is getting a wee bit chilly in here.
Also another wake up call was I know I have been dreaming of going on holiday to Turkey and another cruise after my transplant, but I'm now wondering is it really going to be a reality unless I can go back to work full time to pay from them? I'm not desolate by any means, but I want to pay for my funeral etc and that will take a big chunk of my savings.
Mind you I've already been told told that all benefits stop after the transplant, so I'm going to have to go back to work whatever happens!
Yesterday I was listening to a retired couple telling me about this holiday to Las Vegas and that holiday to the Caribbean on a cruise, plus all the others and I realised that if I had retired when I was supposed to, then yes I could have been that woman, but now I'm starting to wake up to the reality of my situation.
Goodness me, reality sucks!

So from now on, blanket and gloves to be worn at all times in the bungalow and no more illicit spending. Anyone that hasn't got a pressie for Christmas, will get an I.O.U!
Luckily I do have some pre paid treats coming up, so thank heavens for forward planning by me.
But not all bad news...I have now lost exactly one and a half stone. Two and a half pounds from my goal weight set by Papworth...Yay!

Lots of love Debbie x

A problem shared is still a problem

Ever since I accidentally flicked the pin off my dressing table a few days back, the one that I used to hold my poppy on with for Remembrance Sunday, it's been like playing Russian Roulette every time I take a pair of my whites out of my knicker drawer.
No offence to my Russian readers.
Even though I check them before putting them on, I just know the day is going to come when I get stabbed in my nether regions when I least expect it.
I suppose the sensible thing, would be to take them all out and go through every single one, but since when have I been sensible I ask?
There always seems to be a hundred and one other more pressing things to do than sorting out my knicker drawer.

I did have a lovely long lie in today though as I forgot to set my alarm clock. I have no idea why I still have this routine of setting my alarm every night, as to be honest if I'm not going anywhere early, then why worry?
Last night the Labour club quiz was quite good fun, although it did actually bring to my attention just how thick we actually are I'm ashamed to say, as we came second from the bottom. Still it was good fun and as I didn't have to do anything other than just sit and pretend that I was thinking about the answers, it wasn't any strain on me. Well actually, I did get quite a few right. Plus it wasn't a late night, so I snuggled down to sleep quite happily. It was foggy and very cold outside, which made snuggling down under the duvet even nicer.

I did decide last night to go to the Bowls club monthly lunch without mother today, which I did feel really guilty about, but it was so much easier to relax with just my friends.
Plus after having to do a 'dash' (ok a worried walk) over there again this morning to put her 'deep heat' ointment on her back, because after I spoke to her on the phone and she said she couldn't do it on her own and then having her crying because she felt in pain when she walked, made me realise that I had made the right decision.
Please don't think I am hard hearted as I am far from it, but when she realised that I was going out without her today, she did actually start walking around the bungalow fine and when I got back after lunch to play scrabble with her and cook her a meal, she had already put the ointment on her back and was really quite chirpy sitting there munching through her 'Turkish delight' chocolate.
I know that at times I do too much for her and at nearly 94 she is quite wiley at getting what she wants and I know she that she really wants to move in with her, but that isn't going to happen...sorry mother.

I did have a bit of a problem while at the Bowls club lunch myself, which did have me wondering if this was karma for going without her and that was my liquid oxygen unit was playing up again.
It keeps having what I think is a series of air blocks where no air comes through and then it makes rapid pulse noises before the oxygen builds up before working again, but only after you've squeezed the nose piece together with your fingers.
Unfortunately when you are in a noisy room like today, you just have to hope that it is working properly by giving you a constant flow of oxygen, which unfortunately for me it clearly wasn't.
I can tell when it's run out of oxygen or not working properly, because you simply start struggling to breathe more than normal as your nostrils are blocked up by plastic, which is what happened to me lunchtime!
This unit was only given to me last week as my other was leaking from the bottom. I hate calling up the oxygen call centre as I sure they must think that I am this hopeless complaining old woman that has broken another one, but I can't have a piece of equipment that I can't trust when using it. After all I struggle with my confidence as it is about going out to places.

Every day seems to have some sort of challenge or another just lately, whether it be cars, arguing siblings, chest infections, faulty equipment or what, but there is always something. I'm being to think when I am out for the count for those three days after the transplant, it will be a much needed respite from always having to sort out some bloody problem or other.
I would rather be laying on Oludeniz beach though with a pair of fit and healthy lungs...dream on Burders!

Lots of love Debbie x

Any old iron?

Thankfully I had a better day yesterday after my dose of the weekly Thursday blues. I even had a spring in my step which turned out handy when it came to doing my rehab class.
That is one of those things that you dread having to do...exercise...but after you have done it, you feel like a million dollars. Ok probably not quite a million dollars, more like £2.50 in my case!

The good news was that I got my results back from the lab regarding my smear..and were negative incidentally...but the timing was very impressive as I only had it done last week and the results came by post which can take ages even with a first class stamp on. Just shows that there is such a thing as a rush job when needed.
I had the letter faxed off to Papworth as my doctors hadn't received the results, which I'll give them the benefit of the doubt it could be true, but as they put the results of my 2008 test in the wrong column, nothing would surprise and I didn't want to take any more chances.
After talking to Papworth, it didn't look like I was going active yesterday, as they still have to be quadrupled checked yet again by the doctors. I reckon this is going to be like waiting for a bus, you'll wait for one matching donor and six will come along all at once!


Today has been just a steady day.
My friend who loves cleaning and being helpful came round and washed the bungalow down from top to bottom, scrubbing all the bits that need a bit of elbow grease and that I can longer do as I haven't the energy. Plus she can use bleaches etc, which again I can't do as when leaning over them using them and breathing in the fumes, they make my breathing ten times worse.
It looks all lovely and shiny like a new pin when she is finished, windows inside and out sparkly, woodwork, worktops and kitchen sink gleaming, you get the picture.
I'm not a tramp believe you me, as I keep my bungalow clean and tidy, but the spring cleaning jobs that you do once a month are sadly beyond me now.

So I went over to my mother's while all this was going on and supervised her shed clearing exercise. My son couldn't do it in the end, so my friends stepped in and ferried the junk down to the community skip that comes once a month.
My mother now has the hump as she thinks that I have thrown away valuables rather than a broken lawn mower which my brother blew up, a knackered hoover which I gave her my good one when hers blew up and I then had to buy a little one that gets filled up in minutes, because she refused to buy another! And a variety of junk, including old washing up bowls, the mouse chewed seat off of her deck sun lounger, mouse chewed seats off of I've no idea what and odd nameless things that looked far from being treasures!
And I upset a lot of spiders on route, as they had their homes ruined and made homeless in this exercise and I really can't cope with spiders, especially angry ones!

I need a very long lie down now.

Lots of love Debbie x