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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Wednesday, 30 November 2011

Velour v flannelet

Ooo one tired bunny today when I woke up, so it was definitely pj and lots of strong green tea sort of morning .
I am still weighing up the pros and cons of velour track suits versus flannelet pj bottoms and my old university hoodie.
I know that I look less like a 'crack head' in my velour, as short bleached blonde hair, dark bags under eyes and a hacking cough, may give out the wrong impression, especially while I'm walking around with my shoulders tensed up around my ears in my hoodie and syringes on my bed.
But bleached blonde hair and a woman of a certain age dressed in velour, sounds very Essex too!
Lordy no wonder I live alone, as I can't win either way really!

I did have a leisurely morning to recharge my energy cells, that weren't charged up last night because of lack of sleep again.
I realise it's only a matter of time of when my sleep pattern returns and all will be harmony in my bed again, but until then I will continue shuffling around in the morning until I am ready to rock and roll with the rest of the world.
Of course if I do get the transplant, then I'll be unconscious for at least three days while my body is healing and the doctors keep you out for the count for that long, so I'll definitely catch up then...mental note to warn them that I like my sleep and they may need a rocket launcher to wake me up again!
I think one of the things that is keeping me awake, is that I might not get chance to say goodbye to mother before zooming off to have it all done and that worries me.
On the other hand, I'm trying to always leave her bungalow in a good mood, to leave her smiling and of course to tell her I love her about ten times as I walk through her front door, so she is getting the benefit of me worrying.

Ooo... I've just had my heart jump through my chest and into my mouth as I type!
Earlier I asked Derek's son if he could set the Papworth numbers on my mobile phone to a different ring tone to everyone else's and my phone just went off playing the new ring tone...OMIGOD.
After leaping across the table for the phone and nearly knocking it onto the floor, I then juggled it in the air for a couple of seconds like a hot potato, while I fought to get control of it before checking the number.
But he must have set everyone else's numbers on the new ring tone and Papworth on the old, as it was my youngest son wanting to know which dentist I had booked him into for tomorrow!
I may have weed myself a little bit there I'm afraid folks...
Nerves of steel...nah...nerves of marsh mellow more like!

Lots of love Debbie x

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