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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Sunday, 20 November 2011

A problem shared is still a problem

Ever since I accidentally flicked the pin off my dressing table a few days back, the one that I used to hold my poppy on with for Remembrance Sunday, it's been like playing Russian Roulette every time I take a pair of my whites out of my knicker drawer.
No offence to my Russian readers.
Even though I check them before putting them on, I just know the day is going to come when I get stabbed in my nether regions when I least expect it.
I suppose the sensible thing, would be to take them all out and go through every single one, but since when have I been sensible I ask?
There always seems to be a hundred and one other more pressing things to do than sorting out my knicker drawer.

I did have a lovely long lie in today though as I forgot to set my alarm clock. I have no idea why I still have this routine of setting my alarm every night, as to be honest if I'm not going anywhere early, then why worry?
Last night the Labour club quiz was quite good fun, although it did actually bring to my attention just how thick we actually are I'm ashamed to say, as we came second from the bottom. Still it was good fun and as I didn't have to do anything other than just sit and pretend that I was thinking about the answers, it wasn't any strain on me. Well actually, I did get quite a few right. Plus it wasn't a late night, so I snuggled down to sleep quite happily. It was foggy and very cold outside, which made snuggling down under the duvet even nicer.

I did decide last night to go to the Bowls club monthly lunch without mother today, which I did feel really guilty about, but it was so much easier to relax with just my friends.
Plus after having to do a 'dash' (ok a worried walk) over there again this morning to put her 'deep heat' ointment on her back, because after I spoke to her on the phone and she said she couldn't do it on her own and then having her crying because she felt in pain when she walked, made me realise that I had made the right decision.
Please don't think I am hard hearted as I am far from it, but when she realised that I was going out without her today, she did actually start walking around the bungalow fine and when I got back after lunch to play scrabble with her and cook her a meal, she had already put the ointment on her back and was really quite chirpy sitting there munching through her 'Turkish delight' chocolate.
I know that at times I do too much for her and at nearly 94 she is quite wiley at getting what she wants and I know she that she really wants to move in with her, but that isn't going to happen...sorry mother.

I did have a bit of a problem while at the Bowls club lunch myself, which did have me wondering if this was karma for going without her and that was my liquid oxygen unit was playing up again.
It keeps having what I think is a series of air blocks where no air comes through and then it makes rapid pulse noises before the oxygen builds up before working again, but only after you've squeezed the nose piece together with your fingers.
Unfortunately when you are in a noisy room like today, you just have to hope that it is working properly by giving you a constant flow of oxygen, which unfortunately for me it clearly wasn't.
I can tell when it's run out of oxygen or not working properly, because you simply start struggling to breathe more than normal as your nostrils are blocked up by plastic, which is what happened to me lunchtime!
This unit was only given to me last week as my other was leaking from the bottom. I hate calling up the oxygen call centre as I sure they must think that I am this hopeless complaining old woman that has broken another one, but I can't have a piece of equipment that I can't trust when using it. After all I struggle with my confidence as it is about going out to places.

Every day seems to have some sort of challenge or another just lately, whether it be cars, arguing siblings, chest infections, faulty equipment or what, but there is always something. I'm being to think when I am out for the count for those three days after the transplant, it will be a much needed respite from always having to sort out some bloody problem or other.
I would rather be laying on Oludeniz beach though with a pair of fit and healthy lungs...dream on Burders!

Lots of love Debbie x

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