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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Monday, 28 November 2011

Ooo sleep deprivation is making me cuckoo

I have started to rock backwards and fore wards or either sideways when standing, so I think I officially have sleep deprivation, either that or I'm getting broody!
A whole nights sleep is definitely evading me at the moment and leaving me feeling really rough when morning comes.
A bit like I have been out for a night on the town with the Rolling Stones, Ozzy Osbourne and Alice Cooper in their hay day and who ever is the bad boys of rock now. Although I don't honestly think that nowadays they make bad boys rock stars like the sort from my generation...oh blimey, I have stepped into that trap of quoting 'in my day!'

I can handle this uncertainty of 'will they won't they' calls, so much easier in the daytime when there are people about, but come the moment when I switch of the lights to go to bed, the old wobbles start again.
I fell asleep today late afternoon in the armchair and woke up in the dark, but with a real start as there were blue lights outside my bungalow. For one horrible moment, I thought the ambulance had come to collect me without pre warning me and started hyperventilating...again!
In actual fact it was next door's pretty blue sparkly Christmas lights which they very kindly put on my hedge too. I've always wanted pretty outside Christmas lights and now my kind young neighbours have granted me a wish come true.

Rehab was fairly hard work this afternoon too, as I was lacking badly in energy.
Not only haven't I slept properly, I also haven't really eaten properly either since last Thursday and I now feel that I am expected to do four minutes... I know that doesn't sound a lot, but believe me if you are short of breath, it's a life time... on each exercise for the old lady's sake who sits near me. She is so proud of me and cheers me on, while some of the other older men just glare at me. I'm sure they think I'm showing off, but believe me, I'd love an excuse not to work my tush off today!
I sometimes stay on for the talks that follow even though I have heard them about five times each, but the physios like me to help by inputting and getting the others rehabers to join in. Sometimes it is hard work for them as no one says anything ad they are just met by a stony silence.
But tonight I knew I had to buy a birthday card for my niece and then take it round to my mothers for her to fill in ready for tomorrow. That is a task on it's own as she has lost all confidence when it comes to filling in cards and asks me over and over who is it for and how do you spell the name. Then off home to do my drugs before then go off to 'tubby club' to be officially weighed in.

I didn't think that I would be very successful tonight, but how wrong was I? I lost another 1.5lb which means just 1lb more and then I'm at target weight.
Ann reached her target today and was really chuffed, relieved and bouncy like a puppy dog!
It's not been that hard actually, as she has lost 1st 6lb in 17 weeks and cheats like you would not believe and hopefully next week, I would have lost 1st 9.5lb in 18 weeks. I am really chuffed with that, especially as you get sparkly stickers for each milestone. Being a useless pupil at school and in the end, only saw school as an extension of my social life, I really never got many gold stars. Perhaps if I had got stars in the early days, I would have tried harder, as I throw my heart and soul into learning now and actually enjoy it.
So perhaps tonight I will drift away into a contented sleep, as I've eaten and had a hot bath... so fingers crossed!

Lots of love Debbie x

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