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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Wednesday, 14 July 2010

Big grin today

I feel more in control again today and feeling a lot better which a most welcome feeling.

I had my toe nails gelled and painted again last night ready for Friday by Ann, who not only does beautiful nails, but is also a sports masseuse if that's the correct word I'm looking for and once a month puts my back and shoulders out of their misery. Anyway I was telling her about the cute physio guy and how he said that my shoulder had a 'something something rotated cough' to which she laughed her head off and told me it was a 'cuff' not a 'cough', so yes I am a dompah with bad hearing!
I love my deep red toe nails and the fact that I don't have to repaint them for weeks on end once she's gelled them. I will miss not having them done when I'm waiting for the transplant.

My excellent friends Derek and Julie who I love and adore, came tonight to put up the mini marquee and the gazebos in my garden and it looks fab. I was totally useless of course and just sat there unable to made a decision about anything, in fact their little grand-daughter was of more use then me as at least she was watering my plants... and herself admittedly. So I made tea instead. Was a bit concerned that I may wake up tomorrow and either the marquee will be half way down Silver Street hanging on someones washing line or I'll have an extended family of Nomads living in there complete with my hanging baskets!

I sorted out all the pretty tea cups and teapots that we are using for table decorations on Friday ready to take tomorrow. I've done a little diagram ready to give to Emma at the Compasses, as bless her she said she would get it all ready for them. Felt good doing something again as I felt so useless the last couple of days.
The man two doors down from me, sent loads of cherries around for the table on Saturday as Reni really wanted that as a centre piece and his tree is so heavy laden with them. Mind you he sent not one, but three big bowls full round and I must not be tempted after what my poor old bottom has been through!

I think I will go to bed smiling tonight.

Lots of love Debbie x

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