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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Monday, 5 July 2010

Counting sheep

Just read yesterday's entry again and what a lot of twaddle! I knew I was feeling drained, but blimey I sure do talk some crap when I'm tired and it got worse today as I barely had any sleep last night.

It was so sultry last night, barely no movement in the air at all. To make matters worse there was so many daddy long legs who had decided to squat in my house, that I couldn't have the bedroom windows open until all the lights were off.
The heat was unbelievable and I was so exhausted that I didn't have the energy to drag the electric fan out from behind the screen in my bedroom. I saw every half hour in until about 3am just gone. I think I must have drifted off laying on top of the bedclothes, because when I woke up this morning my body sweat must have chilled on me where the night air temperature dropped as I could barely move where I was so stiff. It was a case of going in late to work I'm afraid as I really didn't feel a well bunny and I needed a warm bath to try and ease my aching shoulder etc.

At work I had trouble actually speaking properly and a call from the oxygen company where the portable unit still hasn't turned up made matters worse. I just wanted to sit and howl. I did feel sorry for the man, but I had a signed collection from FedEx, the post room said he had taken it at long last and it's still missing and FedEx is trying to blame us.
Tireness then started to really kick in as for every one thing I dropped, I knocked over another three things trying to pick it up. Emails made no sense when I read them and it seemed harder than after when trying to explain things to students.
After a nose bleed I gave up and went home to try and grab 20mins sleep before rehab. I had no intention of actually doing the exercises just getting my stats done, but Ruth has a gentle way of persuading you and yes I did feel better for doing it. Seems madness that I now do more exercise then I ever did before I was ill and in this heat!

Luckily tonight it is cooler... I won't count my chickens yet, but hopefully I'll get more than three hours tonight. So nite nite

Lots of love Debbie x

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