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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Thursday, 25 August 2011

Phones at the ready

Well I shall never earn my living from dress making, as it's taken me two episodes of Celebrity Big Brother, back to back to hem Julie's maxi dress by hand ready for her holiday.
Reni and myself were too cowardly to try stitching the hem up on the sewing machine, as it's been years since I've been on one and Reni was too nervous.
Actually it's been 34 years since I've been on a sewing machine and that was when I made a shiny jump suit for my ex to wear on stage when he was singing in a rock group. And before that it was making an apron at school!
I think Viviene Westwood's job is safe don't you?

Not a bad day today. Lots of phone calls to various people starting with the oxygen company, as either my mother ship in the garden is faulty or the unit that I carry on my back is faulty, but liquid oxygen is spurting out everywhere when I'm trying to fill the unit and it's only half filling each team.
Not good when you need to go out and about trying to be normal or as normal as you can be with tubes up your nostrils.
They are sending out two more of the old heavy cylinders tomorrow for me to get me over this weekend's bank holiday.
Next call was to the Carecall help centre for my Docobo, which is flagging up problems with the wiring again. I'm hoping that I have checked everything that I should, as I'd hate to get someone out tomorrow to fix it if it's not broken.
Another call with the Social Worker regarding mother where they do an assessment over the phone. I was really impressed with mother, as she actually answered all the questions over the phone call herself without just giving up saying she can't hear and handing it over to me.
She isn't as helpless as she makes out it seems.
Plus she was quite disappointed that the new carer never turned up this morning, as she was going to have a shower. The poor girl apparently fell over and twisted her ankle.
Bit annoyed that the office never called to let us know though. I had to call them to see what had gone wrong, just aswell mother wasn't sitting in bed waiting for her.

Still I had had some fun today rather then just reverting back to my old work roll of an information and welfare assistant, and I met my friend for lunch to swap birthday presents.
The last time we met up, it poured with rain and today it was dejavu. The close was so flooded, that I had to climb into my side of the car across from the passenger seat, as the huge puddle on the drivers side was so deep that it would had covered my shoes!
Wearing an oxygen unit on my back, does not promote nimbleness in climbing across the car seat I'm afraid and there was a lot of mumbling under my breath especially when climbing over the gear stick. The last time I did that, I was a lot younger, at least 37 years younger!

Saw my first V formation of flying birds on Tuesday evening by the way. Forgot to tell you that with all the happenings that night.
I did say that my birthday always heralds the start of Autumn and I wasn't wrong. It's already getting dark by 9pm now. What will Autumn bring I wonder?

Lots of love Debbie x



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