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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Friday, 26 August 2011

Someone buy me some roller skates

Strewth, it was like Piccadilly Circus in my bungalow first this morning. I really wanted to lie in and have at least another half an hour sleep, but I couldn't because I knew I had a lot of ground to cover this morning.
Straight off at 9am this morning, it was the lady from Carecall to try and fix my Docobo, but alas it seems like it is now defunk. She tried everything to fix it, but in the end she had to remove it.
Although everything seemed to be working this end, my stats weren't going through to where it really counted. As thankfully as I am feeling fitter than I have been for ages at the moment, she was able to take it away until she can get me an updated one with a simm card instead. I don't actually know what that means, so I just nodded a lot.
Hopefully I won't keel over in the mean time.

As she was leaving with all the docobo equipment which felt a bit scary, my friendly oxygen guy turned up with my emergency DD cylinders. I don't even think I had a proper chance to say goodbye to her before he was in and chatting away nineteen to the dozen.
He is a sweetie.
Always talks about his dear old gran that he lives with, but I have a sneaky feeling that he is putting my in the same age group as his sweet old gran, as he keeps calling me 'dear' all the time and talks very slowly and loudly!
Still if worse comes to the worse with the mother ship totally packing up outside, I won't have to stay indoors and still get out and about over the weekend now I have my back ups.

Jean came round for morning coffee, but no cake this time. Hard! I loved my chocolate muffins and a cuppa with Jean.
We sat chatting when my mobile went off with 'unknown' flashing up on the screen, which normally means someone medical on the other end.
This time it was the Transplant nurse at Papworth.
Jeepers, I nearly wet myself until I remembered that I haven't had my three day stay at Papworth yet, so it couldn't be 'The' call.
She just wanted to know if I had completed the two extra tests at Broomfield yet and she sounded none too happy when I said that I had only just got the appointments through.
Unfortunately, I now won't be going up for my three day stay until at least the beginning of October. Damn, more delays.

After that it was non stop calls regarding my mother. The doctor called twice to make her an appointment regarding the 'Memory clinic', but mother has to have blood tests and an urine sample done on Tuesday and then she'll book her in for a scan.
She won't be none too happy about that one I can tell you. You'll think I'm trying to murder her when she has to have that one done, the blood tests will be bad enough!

Then off to rehab in the afternoon for more fun and follicks exercising, before coming back to mother's and making her evening meal, before going off to Lynn's for our meal in the pouring rain. Hell this is a harsh summer.
I do believe I'm starting to get a firm muscle in my upper arms though from all this weight lifting!
Ooo how exciting, no bingo wings for me in future!

I am now so tired, that I feel like a limp lettuce leaf so time for bed.

Lots of love Debbie x


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