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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Tuesday, 30 August 2011

Win some, lose some... 2lb in fact!

I've been dealing with a lot of pent up anger today, brought on by two issues. My mother and the fact that we seemed to have bypassed summer and moved straight into winter judging how cold it is here today.

Mother was having a blood and urine test this morning and she was supposed to starve herself from late last night until after she had the blood taken.
When I called round to pick up her urine sample to take down to the doctors for 10am, I could swear that I could smell toast even though I had stuck bright yellow post it notes everywhere saying 'don't eat' and both my sister and myself had rang her to remind her.
When I called back round to take her down to the surgery for 11am, she nodded and said yes, she had eaten toast, but then she couldn't remember whether she had eaten or not when she saw the look of horror on my face.
The lady who takes blood at the surgery, isn't the most happiest of women in the world and I was dreading her response, to which of course I would have to defend my mother to the death, even though at this particular moment in my life, I could cheerfully strangle her myself!
Actually the vampire lady wasn't too bad this time. She would make a terrific poker player though, as her expression is unreadable, where mine was clearly one of sheer bally frustration!

Mother has also worn me down with her non stop complaining about the gardener not trimming the hedge in front of her shed, so I attacked it.
Of course it's laughable really seeing me, a 'raspberry ripple' complete with an oxygen unit strapped on my back, cursing and panting as I ripped into the hedge. It might not be the straightest job in the world, but it was done in record time and actually I think I did do a pretty damn good job. Obviously, being an ex hairdresser helps when it comes to styling hedges!
Mother's neighbour then called over the fence, that he was going to do the hedge for her today as it had actually stopped raining at last. He told me that he had explained to the gardener that he usually did the hedge for her, but then it started raining when he was about to start it after the gardener left... count to a hundred Deborah!
It was as I was tidying up afterwards, that I realised and I'm running the risk of being ridiculed forever now by my friends, that I get a big kick out of seeing my hedges looking neatly cut too, so I shouldn't really moan at my mother, as I am rapidly turning into her.

Still it wasn't all doom and gloom today, as I lost 2 more lb at tubby club tonight...whoa hoo... and both Ann and me were the slimmers of the week as most people put on. We had both lost 2lb each.
Typical that the prize fruit basket was only half full this week, so I let Ann have it all. But the best bit is that I have only got to lose one more lb and I have lost half a stone, how fab is that!? Only a stone to go and I've reached my target weight of 10st 2lb.
This will show Papworth that I am serious about this transplant and as it looks like it is going to be October now before I go up for my three day stay, so I have a really good chance of being a stone lighter by that time if I keep up the good work.
Ann got her sticker for her first half stone lost tonight and I was truly pleased for her this time. No snarling through gritted teeth.
I am wondering though as I sit here with a shawl wrapped around me to keep me warm, have we got to carry on wearing summer clothes so that don't weigh as much all through winter?
Some of the girls come in the same clothes each week and remove all their jewellery, surely it doesn't make that much of a difference, does it?
I have a barium swallow examination tomorrow, I wonder how many 'syns' in that?

Lots of love Debbie x

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