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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Thursday, 11 August 2011

Sing it again Louis


Ah bliss, a full nights sleep and a lie in this morning, does life get any better than that.
Thank heavens, as I was getting to be a bit brusque with people as well as getting very tired with all the trials and tribulations that were coming my way.
My night ended with much swearing and stomping about doing a spot of hand washing. When I was walking into my bedroom to go to bed, my oxygen tubing got caught under my bedroom door and jolted my arm which in turn spilt my chamomile tea all over all over my new pure white cardigan which was on the end of my bed.
I was furious and had yet another late night after standing at the kitchen sink hand washing my poor cardigan.

Still I woke up so refreshed that I felt in the words of Louis Armstrong 'It's a wonderful world'. I was exceptionally slow this morning, but that was me just taking my time and I never hurried to do anything. That was so much better than thinking I had to rush around trying to be everything for everyone.
My mother, after a telephone call said she was feeling better, was up early and had already made and eaten her breakfast and was now just resting.
I was able to go around at lunchtime to heat up some soup for her and have a little chat before going off to sort out things for the new morning carers who were coming Monday morning.
She really seemed so much better in herself and happier.

In the early evening, Julie was kind enough to give me some physio. If I can keep my lungs totally empty of sputum, then I am less likely to pick up mothers infection and everyone else's who keep coughing all over me.
It is amazing just how much phlegm that I produce every single day and I'm sorry if this bit makes you feel sick, but the colour has at last changed to a light green yellow, rather than the horrible green that it was on Tuesday and my temperature has calmed down too.
Looks like I'm going to be good to go for seeing Tom Jones on Friday... Yay!
It's horrible not being able to know whether you will be able to attend anything that you have arranged.
Once I'm on that coach and on my way, I will feel relaxed and happy. Although I'll feel even happier on the way back knowing that nothing had gone wrong.

And in accordance to the British weather, I have had my mac 'super' waterproofed ready for tomorrow night.
Why is it that you just can't just think that yes it's summer and that means summer clothes for all BBQs, music concerts, days on the beach and picnics. I have summer clothes and dresses that I brought early this spring ready for all of the above and they have lived in my wardrobe the whole time. So frustrating.
You watch, I will lose this weight that Papworth has told me to lose and then they will drown me next summer. Ah well, eBay here I come.
I'm not moaning, dieting is a small price to pay for a second chance at life.
No, but what comes off in my experience normally goes back on eventually and to be honest, I have now got to the stage in my life where I wear a more toned down style rather than up high end fashion anyway. Although, I do have a quirky style all of my own, so I'm not bothered if they live in the loft for a while, besides Reni now has an electric sewing machine so I could in theory take them all in.
Actually, I think they are safer in the loft!

Lots of love Debbie x



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